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http://cepuk.org/2020/02/08/guest-blog-nice-depression-guideline-cautious-optimism/?fbclid=IwAR1c2BN81TyQ79EjH8IYSjTeztHESk1i7rP3-GmiJJDLLH3HDrNlaxR8M2c

The population of China is around 1.4 billion...

Why were you refused membership?!

The only "gains" I can think of are that I'm extremely unlikely to be involved in a road accident (given that I'm rarely able to leave the house), much less likely to be a victim of violent crime (for the same reason), and I am never at risk of getting sunburnt. Wahoo. Yay.

If you have the energy to give them feedback, and you consider it a worthwhile use of your time (and if you don't find it soul-destroying), then please go ahead. You're good at articulating these sorts of issues. I don't personally have the energy for it, and in my experience giving them...

Exactly. And when we try to explain our concerns to MEA, all they do is whine that we're criticising them, and bang on about how busy they are. I even saw CS tell one very severely ill PWME that she should set up her own charity if she didn't like what the MEA were doing! Which is totally...

I'm not even surprised by any of this. I have no faith in the MEA. They, like AFME, are trying to keep both PWME and The Establishment happy. Which uh... isn't really possible.

:emoji_joy::emoji_joy::emoji_joy:

Erm. No. I have never heard a single person with ME/CFS say that it enabled them to spend more time with their family. If you're sick enough to be unable to work, then you're generally also sick enough to be limited in how much time you can spend with your family.

This leaflet says that GET is "not appropriate" and not helpful, but it doesn't say that it's dangerous. It doesn't say either that their CBT is inappropriate and dangerous.

Okay, this is problematic. Only a "small number" of GPs still have unhelpful attitudes towards ME? Oh please. The vast majority of them promote GET/CBT. Why are the MEA encouraging us to seek management in line with the current NICE guidelines? Why are the MEA encouraging us to seek referral...

https://www.meassociation.org.uk/2020/02/new-mea-guide-me-cfs-the-ten-key-aspects-of-management-05-february-2020/?fbclid=IwAR3R0s1AF3v1ZqGutZFVipo1YGEqHCgsBqnrlSCKiELowPvN5CTP8K34Wz0

Really? For most people it is true though? ME is just an exception.

Both are true.

Ooooh

Sorry I don't have the cognitive function to work out what you're implying. Can you spell it out to me please?

Oh clearly she wasn't saying that. Presumably she didn't have the energy or time to write a sentence about each of those.

And 46%, does that mean that 46% of the preventable harm was due to these diagnostic errors? Or that 46% of people were misdiagnosed?

I can't really see this happening. Once the CCG people read the book and find that it is against CBT/GET/etc (it is, right? Please tell me it is??), they will surely change their minds. They're not gonna go giving GP's a book that disagrees with the official NHS line.

What does that mean? Errors of diagnosing physical disease as psychological? Or errors of (supposedly) diagnosing psychological disease as physical?