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If it’s not set down somewhere in law This business of the appeal timeline being based on the notification of the grant rather than the public announcement appears to me to be open to a complaint of maladministration to the ombudsman.

Has that been reported somewhere?

The Peter principle comes to mind :whistle:

Yes but in the works can mean 2 weeks 2 months or 2 years so the distinction between shortly and at a later date is elastic. In my opinion a further written question is already justified.

@EndME NSKG?

Given ME Association experience and having achieved ASA rulings against such organisations in the past probably best referring it to them https://meassociation.org.uk/contact-me-association/

Except that Madan et various other psychosocial types Occupational Health Guidance on “CFS/ME” remains in place as the NHS guidance to employers (Occupational Health Advisers). Eg https://www.nhshealthatwork.co.uk/images/library/files/Clinical%20excellence/CFS_employers_leaflet.pdf And this is...

It does make sense @Trish your tweet that is - not the blocking

Shopping Bag Award for most ridiculous research

https://me-pedia.org/wiki/Chrysalis_Effect See ME pedia entry which mentions ASA

The link for PAG application form now says they have had enough responses and they have closed the process so it is positive there has been a good response but they have closed it two weeks early. I hope there aren’t people spending precious energy working on applications who don’t know the...

Unfortunately I don’t think MPs and their parliamentary assistants seem to put enough thought into framing questions to get specific responses or follow up when they get generic replies. Some are content to top sheet hoping whatever response they get from a department is enough to demonstrate...

Follow up question required to ask for timeframe ie will it be before the recess, before the end of the year…..

Yes, short and to the point.

Similarly I’ve got a meaco air circulator fan which isn’t silent but is barely audible and is very effective. I also use physio gel packs that I freeze and wrap in a scarf to use against my core or back of head/neck. Usually at night to help sleep under normal warm summer conditions. but...

Sick leave is a fuzzy area if you’re on a phased return you’re not working your full time hours but are partially off sick, after 3 months could still be trying to return to full time. Or still being in employment unless it means return to previous role/hours could mean people have formally...

This is such a good idea, hopefully there will be some good learning that can be passed on to researchers. You mentioned gaming not needed much thinking but doesn’t the reaction that leads to pressing the buttons involve a fair bit of cognitive energy. Maintaining concentration and spatial...

https://www.decodeme.org.uk/faqs/will-i-receive-my-dna-results/?seq_no=2

Diagnosed with depression, anxiety etc etc I quote from the GP I first discussed a CFS diagnosis when I first discovered this possibility. “ We don’t like to give that diagnosis it is better to treat the symptoms.”

. Bit pompous quoting myself but I could see this coming. IIME could do something really radical with their (PWMEs)money by bringing together everyone in the U.K. involved in ME biomedical research.