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19,007 I think it is going to take a while to go over 20k at this rate

Thanks to everyone for all your hard work on this.

Premier League assist by @Caroline Struthers :thumbup:

Just had someone with ME who is FB friend sign this and share. There are still people out there to reach

Rate of signing has slowed down now 18,740. Would be great for it to get over 20k, 1250 more. I think it would be good if everyone who is able can send out another social media post. Especially on Facebook there’s no guarantee friends have seen this and it is definitely worth doing follow up...

Other symptoms fluctuate in response to whatever is going wrong due to exertion eg i get various degrees of sore throat from a bit croaky right up to laryngitis where I wasn’t able to talk without pain for 3 weeks. So I guess that could just be the same for food intolerance.

If they believe it it must be true right, the researchers that is of course not the people who actually have the illness.

As an influential group maybe this should be prompting them to get some evaluation done so it’s more than Group throwing stuff at the wall to see what sticks. Even if it is ‘what we’ve been doing for years’. That is a weak argument as we’ve been discussing elsewhere. Maybe I’m coming across...

If they are ok with including amitryptiline etc and gabapentin etc for sleep they haven’t even mentioned melatonin which at least doesn’t have sedative hangover. Is there any thorough evaluation anywhere of the benefits and downsides of these drugs specifically in ME/CFS?

I had a guy that was a handyman to do decorating for the pre sale refurb on my old house. I was able to do moving stuff myself and he then put big furniture in the middle covered with dust sheets and worked round. I found him on a list of trusted traders on the local age U.K. website. Now I’m...

Yes @Peter Trewhitt FB is so rubbish for finding posts that if someone sees a post and thinks I’ll have a look at that later they probably will struggle, even if they do remember. And if they’re someone who likes lots of stuff your post might not even pop up on their list. The only way you can...

Well it’s definitely going to be over 16k before 3pm as only 40 more needed will it reach 17k? I think it is possible if there’s another rush hour in the morning

Thanks @JohnTheJack i did wonder about the audience for unherd when I spotted one of the writers has the surname Furedi

Good wondering how many more by the end of the week, 17500, maybe even 20,000 is achievable

It suffers a lot with word choices but I’m repeating myself.

Socio-narratology - mmm well all I take from it is a classic example of specialised academic language and terminology seriously hampering communication.

i just don’t get why they do that. It’s extremely confusing for non-science people no wonder people get carried away into thinking these throwaway claims have some kind of basis.