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  1. NelliePledge

    Poll - Have You Ever Believed In Psychosomatic Illness?

    I don’t think it really registered with me I definitely had heard of psychosomatic but didn’t think about it in any depth. To be perfectly honest people being malingerers was more on the radar. I didn’t believe that this applied to anything other than a small minority but I did have a couple...
  2. NelliePledge

    Proof of concept of prehabilitation: a combination of education and behavioural change, to promote physical activity in people with FM 2023 McVeigh

    Yeah symptom fluctuation should be an outcome And The actual perceived improvement being half that expected by the patients Is definitely telling them useful information that may be new to these researchers - Need to understand negative impact, does any perceived benefit outweigh the impact...
  3. NelliePledge

    Recognition, explanation, action, learning: Teaching and delivery of a consultation model for persistent physical symptoms, 2023, Fryer et al

    Energy conservation…. attention & amplification so as soon as you say I have to try to manage my energy carefully, I have to monitor my symptoms you are pressing alarm buttons traps to those who have been through this “training” and have had their thinking adjusted away from believing you
  4. NelliePledge

    Trial Report REFUEL-MS - CBT/GET Digital Intervention MS-Fatigue

    It’s bizarre using that random upper and lower case like some stereotype of the way an anonymous threatening message would be written
  5. NelliePledge

    United Kingdom News (including UK wide, England, NI and Wales - see separate thread for news from Scotland)

    As it is a Regional paper there’s a strong possibility this will also pop up elsewhere in the country due to common ownership or syndication.
  6. NelliePledge

    Research news from Bhupesh Prusty

    how about some tiny mouse shopping bags, or standing on a paper sheet and squeaking stop in mouse. Eta. Just to say this comment ^ is obviously flippant but I also disagree with using mice/rats
  7. NelliePledge

    Thesis System and methods to determine ME/CFS & Long Covid disease severity using wearable sensor & survey data, 2023, Sun

    As a simple non scientist I think that whatever movement the step counter reacts to for that individual if a given intervention results in them moving say 10% 25% or 50% more in months following than in months before the intervention then that’s evidence of them being able to do more.
  8. NelliePledge

    Anomalies in the review process and interpretation of the evidence in the NICE guideline for (CFS & ME), 2023, White et al

    On the Guardian article specifically I just went to the home page and I had to do some scrolling it wasn’t highlighted near the top of the health headlines I had to click a link for more and it was down the bottom. For the general public this will not really register. It is there more for...
  9. NelliePledge

    Anomalies in the review process and interpretation of the evidence in the NICE guideline for (CFS & ME), 2023, White et al

    They are all adding their names because they are all believers in psychosomatic cause.
  10. NelliePledge

    News from Australia

    Oh specific multidisciplinary care when you really mean CBT/get
  11. NelliePledge

    The Observer/Guardian article: Does the microbiome hold the key to chronic fatigue? About patient led 'research' group Remission Biome.

    Maybe nowadays, they published some of the worst articles in the past - militant patients
  12. NelliePledge

    Lightning Process - discussion thread

    Probably best referred to ME Association to tackle. As they have done with LP website
  13. NelliePledge

    FREE Long Covid and ME/CFS Holistic Healing VIRTUAL SUMMIT July 10-16, 2023

    It’s a real mix. At least those who normally live in the alternative bubble will potentially be exposed to more sensible ideas. What is Methylene Blue? It sounds suspiciously like loo cleaner.
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