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  1. NelliePledge

    Evaluation of a Webinar to Increase Health Professionals’ Knowledge about Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS),2023

    Treatment could be used in the sense of what to do for pwME, how you as a medic should deal with someone who meets ME criteria - what C Shepherd calls management
  2. NelliePledge

    Psychomotor Vigilance Test - discussion and testing

    Response time av 589. Not surprisingly as PEM today following dentist appointment yesterday and I didn’t go to sleep til 9 am I got the same message about suboptimal alertness. eta I will try to remember to give it a go on a non PEM day
  3. NelliePledge

    Anomalies in the review process and interpretation of the evidence in the NICE guideline for (CFS & ME), 2023, White et al

    Dunno sorry - just what I reckon they should do
  4. NelliePledge

    Anomalies in the review process and interpretation of the evidence in the NICE guideline for (CFS & ME), 2023, White et al

    NICE should publish a response on their own website
  5. NelliePledge

    Severe ME Day, August 8 2023 and Severe ME week

    I will share @Grigor’s amazing video on my Facebook on 8/8
  6. NelliePledge

    Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

    :wtf:
  7. NelliePledge

    The damaging rise in therapy-speak

    obviously an expert such as a “celebrity psychologist” knows more about ordinary young adults lives than they do themselves
  8. NelliePledge

    Cochrane Exercise Review Withdrawn - Individual Patient Data

    So it’s been exhumed :wtf:
  9. NelliePledge

    John Campbell - videos on medical issues

    Except the guy that video isn’t exactly a reliable source.
  10. NelliePledge

    What items/documents would you like to send to GPs/primary care physicians if you were doing a mail-out?

    I think a one pager is absolutely the best way to go as an initial communication to try to engage a broad audience of GPs/medical professionals. People are so busy/bombarded by new information. more detailed information should be provided as reference for those who need more when they...
  11. NelliePledge

    Effects of Nature-Based Multisensory Stimulation on Pain Mechanisms in Women with Fibromyalgia… 2023, Gungormus, et al

    Are the flowers in shopping bags :whistle:
  12. NelliePledge

    Integrated Care for Patients with Somatic Symptom Disorder in Primary Care – A Qualitative Participatory Evaluation... 2023 Tönnies et al

    Did they not think that feedback through anonymous questionnaires would be a good option?
  13. NelliePledge

    Review A systematic review of the strength of evidence for the most commonly recommended happiness strategies in mainstream media, 2023, Folk et al

    Urgent need :wtf:
  14. NelliePledge

    Rates of Prolonged Grief Disorder: Considering relationship to the person who died and cause of death, 2023, Thieleman et al

    If people were more supported at the time they lose the person they are close to there would be fewer people who struggle to cope for years. Grieving a death is normal and people shouldn’t be expected to suppress those feelings after a couple of weeks. Equally as we all know part of the...
  15. NelliePledge

    United Kingdom: ME Association news

    True but I think that’s true for most of us whether we realise it at the time or not
  16. NelliePledge

    BMJ Neurology Topic Collection: "Advances in Functional Neurological Disorder", 2023

    “Advances”
  17. NelliePledge

    UK House of Lords/ House of Commons - relevant people and questions

    Not checked but I’m guessing there’s no NICE guidelines on POTS so they’re making the reference to ME guidelines to be able to give a substantive looking reply. Also it may be that the MP has also written in about a constituent and the person drafting the PQ reply is also dealing with that.
  18. NelliePledge

    UK: All Party Parliamentary Group (APPG) on ME news, 2020 onward

    Yes if possible to engage with prospective candidates before the election will be important. eta. Obviously this doesn’t apply to the Lords so hopefully Baroness Finlay’s association would continue.
  19. NelliePledge

    Amygdala and Insula Retraining (AIR) Significantly Reduces Fatigue and Increases Energy in People with Long COVID 2023,Toussaint et al

    Marketing innit
  20. NelliePledge

    Genetic Risk Factors for Severe and Fatigue Dominant Long COVID and Commonalities with ME/CFS Identified by Combinatorial Analysis, 2023, Taylor et al

    Funded by this company https://precisionlife.com/about-us
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