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In a word - Politics

My husband's employers have just changed the level of approval needed for non emergency time off. For now, employees who are planning on travel outside the country need to clear it ahead of travel, otherwise if they get stuck abroad they won't be laid for the time they miss. No visitors...

There's a huge issue with this them and us kind of division - it's false. Many people rely on parents or older relatives for childcare or dropping children off & collecting them from school. Many people are still in the workforce in their mid 60s and onwards. Underlying conditions are often...

I don't know. I'm talking about gastroparesis that has to be managed on an ongoing basis. At the mild end it may mean managing by diet but at the more severe end we're talking feeding by tube.

One thing that does occur me about corona virus, & this might sound strange, but I may not know if I get it. That bothers me because I have some famIly members who are in at risk groups and others who take immunosuppressants for example. I don't really get colds or flu - I appreciate this...

Is @dave30th crowd funding this year? Apologies if this has been asked and answered already.

Great. I know @MeSci wrote to her before explaining the issues and got the brush off. As she's taking an interest maybe we should invite her here to discuss the issues? Edit - that "Great" was sarcastic by the way. More clinics at best not helping much at worst permanently harming people is...

Unbelievable. Just saw a snippet on Sky News - a dr is asked about what disabled people who rely on carers should/could do if people are isolated and stay at home. He says - well, of course this is where teleconsultations will help. You'll be able to see your GP that way. Riiight. How does...

I struggle with watching video clips, but.managed Chris Ponting's on GWAS - very interesting. I also watched Sam Bromiley's. It made me a bit twitchy. AfME highlight the lack of access to specialist services. Given the offerings available, especially the lack of guarantee whether you'll get...

Another issue that strikes me about gut issues is that for some people gut issues may make them more susceptible to illness which could trigger ME, but for others ME may be affecting their gut. The other issue is that we don't know very much about the enteric nervous system. Some ME patients...

That's a fair point and I am sure, for some, solutions in the gut could be found. Not necessarily for everyone though. A lot of the seemingly new advice I 've seen recently are things I spent a lot of time, energy and money on 20 years ago. At one point they and I were convinced that if they...

It's a difficult balance. We don't know what difference having ME will make if we become infected. Versus If we're turning away help that means we'll be exceeding PEM thresholds in order to survive then we'll certainly be affected. I am avoiding all unnecessary contact now. I don't have a...

Sorry I don't want to derail the thread so I'll say this then shut up..... I am sceptical and believe it will be a case of garbage in/garbage out. It's simply too common a symptom and fatigue itself isn't clearly defined enough. If it was simply research into fatigue to try to establish what...

I see what you're saying, I think, @Andy. You already know my feelings on the F word, but if I were to say I felt fatigued it would very much be as a secondary issue. So my function declines, cognitive and physical symptoms arise and I increase effort and then fatigue would start. So for me...

The issue I have with that is the assumption all fatigue is the same. I don't believe that's the case. We might not even be comparing apples with oranges, but with a veg instead of another fruit. Then there's the question of whether it makes a difference whether or not fatigue is a primary or...

Creation of evidence across the diff domains to influence clinical practice and treatments is critical.... No. We've had enough "creation" of evidence thank you. Finding evidence is an entirely different matter. Now, can we focus on looking for it please Prof H?

Yeah.... On the one hand if we don't participate our voices & opinions won't be heard and it also feeds into the patients being anti research meme. On the other we don't want to be used to add authority to something that we don't agree with and otherwise put our names too. However, anyone can...

One of the issues I can think of with cloth masks is the size of the gaps or holes between the weave, if you know what I mean. Professional (commercial?) masks have a grading which block particles of a certain size - a lot smaller than the holes in normal woven material. Even if you were to...

And a brief look on the brighter side..... A lady on my local Nextdoor forum posted she is fit and healthy and prepared to assist those who are elderly or unwell and who need some extra support be it shopping or dog walking or whatever. Now our local group and the next village along are...

This lunacy of it only effects older or people with underlying health conditions is absurd. Both those groups make up a significant number of our workforce. Many younger and supposedly less vulnerable people may have older or ill friends and relatives. They may not realize that some people...