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Cut and pasting cr@p is so much easier than actual fact checking and journalism. Also I noticed in the comments one delightful individual renamed ME as MU (as in Made Up). Probably the sort of individual who has filled their food cupboards with loo roll for the coming months.

I was sure she had recovered after LP and was then rediagnosed too. o_O I certainly remember reading the LP reports with puffs of steam coming out of my ears.

Just saw a clip on the news - Rome, streets empty. Shoppers queuing a couple of metres apart, in silence for the supermarket. No panicking buying or stocking up. Each just buying what they need.

There's attractiveness to others and there how you perceive your attractiveness to others to be. I think are talking about flip sides of the same thing, but both very real. Perhaps we simply come from different worlds, but from my background a female unable to pull her weight is not...

I guess I'm looking at it from the angle that if you have it, you have it and if it's a disease where there's stigma then your stigmatized regardless of whether you're male or female. So I would have considered this sexist if it was about women. Everyone who has it is stigmatized. I think...

Absolutely no question you're right. However, there are a great many women who also never get to marry or have children too. Also roles are not that clear cut in real life. When I got sick I was the breadwinner - my salary paid the mortgage. If we'd had kids at that stage IM would have had...

Or it might be more effective and kinder to our fellow creatures and planet to start doing things very differently.

Am I being sexist, here? We have money to spend on this and not research that might actually alleviate symptoms if not cure? We mustn't be dualist but it's okay to talk about dual identities? WTF? Is it not the change and how an illness affects one's sense of identity, anyway? Women go...

Yep. I had a go. Same reaction. The takeaway I got from the limited bit that sank in - there's a double whammy to the injustice- epistemic - in that because we're ME patients we're no longer credible witnesses to our own experience. hermeneutic - in that there aren't any tests available and...

There are eye or eye movement abnormalities with ME patients though? I seem to remember research on it, but haven't the wherewithal to go hunting. While there is a!ways room for improvement in education, and in our case plenty of it, I think having a speciality where they have a test that...

How does she know? Did she test positive? There's such a thing a mass hysteria....there was an outbreak years ago at the Royal Free I'm told....:sneaky: For the record her medical history is none of my business. My post is less to do with her than to do with illnesses for which there are no...

Nothing against Unrest but Voices from the Shadows and the Dialogues videos are much stronger, in my opinion. They also reflect what reality is like in the UK and local context can be important when assessing the impact on patients and the support they should be able to access but are denied...

I wish Clare Gereda a full recovery as I wouldn't wish ME on anyone. It would be nice to think that she might take the time to reflect that how she felt hardly compares to the suffering of many ME patients for decades. Perhaps she would like to imagine how it would feel to be trapped in that...

Yes. I can see where @Cinders66's is coming from. While on the surface it looks like a step forward in patient engagement it actually keeps them in control of the process. The other thing that irks is the arbitrary top 10 wish list for want of a better term. What if several of the items in...

I think it's worse than disappointing - so much background "noise" of advice is confusing and makes it harder to identify a reliable source for sound,sensible and reasonable advice. It's all very well for the worried well to be running about like headless chickens but we don't have the physical...

I'm not terribly impressed at firing a generic list of supplements at people either. Not only is the science not necessarily proven, they may not be necessary for everyone and therefore be an extra financial burden. Taking some supplements unnecessarily or in the wrong dose may cause other...

Again with the "fatigue" :banghead::banghead::banghead: I agree @alktipping, but whether we're talking "fatigue related" or "illnesses that have fatigue as a symptom" that's a vast range of conditions. Really are the going to cover - anaemia, hypothyroidism, heart disease, MS, depression etc...

To be honest @Barry and I don't want to worry you, but no I very much doubt they will. They will only provide the basics of health advice and nothing else. There are huge gaps in the system between medical, social and personal care and even when you can get something sorted they are really...

When I was looking into which HR monitor to try a couple of years ago I spoke to Apple's very helpful support team. The guy I spoke to made it clear that their devices weren't for medical use. We had a chat and I explained there was a huge market out there for people who couldn't necessarily...

I disagree @Gigi300. There is a long and documented history of the disease being downplayed and deliberately misunderstood. I agree it is a complex illness, but it certainly isn't the only complex illness. It's just one of the most neglected ones because of politics. Edit - sorry but I'm way...