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I got to about 20 minutes or so in. The neurologist came across as very earnest and genuine. Having stated clearly they don't know the cause, the focus then narrowed to the psychological and that some people process emotional or psychological trauma that way. Nothing proven and, of course...

Drat! Missed it. Anyone manage a synopsis?

A relatively has a gigantic Tesco near him in the outskirts of London and decided to pop in at about 9.30am to get no more than a basketful of essentials. He reckoned he spent 5 minutes shopping and then 55 minutes queuing to pay. The queues were 20 people deep. Out for a walk later he passed...

I'm seriously impressed by some of our little local village shops. They've come together as a group and set up an ordering system using one of their websites, selling most of the essentials without markups on their usual prices and are delivering locally. One of the group is a deli with a...

I don't think it has. I think that supermarkets and shops have been caught on the hop by a massive surge in demand. Likewise, people just go for deliveries because it's most convenient to them and don't stop to think that others might be more in need of delivery.

Yes, I've only ever heard good things about her. Sadly, like the good ME consultants we can't clone her. Even good nurses have to toe the line in the clinics they work for, though. That or go elsewhere. Until something fundamentally changes, then more of the same just puts more of us in...

I'm hoping the NICE guidelines might move things in the right direction, but it will still leave us with a long way to go no matter what. Realistically, i don't think people like Crawley will go. Shuffled sideways eventually is probably the best we can hope for. Otherwise there would be an...

All of us here do. I just get twitchy....seen so many people demanding more care and treatment without specifying they mean they want treatments that actually help and not more of the same. Then being upset and annoyed when they get what they asked for.....

:thumbup:. Brilliant!

They would - but only with the right training and expertise - which I am sure is what you're saying @adambeyoncelowe. Members of my family attend assorted specialist clinics and the nurses are specialist nurses and a great help. If the nurses were to be trained to current cfs clinic...

If done responsibly - i.e. not feeding people's fear and panic- then I would view it as timely information rather than cashing in. The tone would have to be carefully judged - in a way that was what I was thinking about in thread about reaching out to help those struggling with isolation...

Definitely. We know that many have suffered ongoing problems post viral infection. How many of those will develop ME and how many will end up suffering further at the hands of IAPT and the BPSers?

Absolutely. Me too, murder as we didn't get on! Plus the whole family shared one bathroom, that kinda makes it tricky too. Some people have no idea just how privileged they are.

Yep, mine too @Arnie Pye. If you were screaming then you were breathing and would probably be fine.

Agreed. Bad days and worse days is more accurate for many rather than good days and bad days. Then at the very severe end of the scale there really isn't much by way of fluctuations.

Yes, there booklet on applying for ESA gives good advice on explaining the fluctuating nature of the condition to the DWP. Without that I'm not sure I would have been able to get my case across & be awarded the benefit. It would be wonderful to see the flip side of this - where the NHS start...

That would be good and it's certainly something to quote but in my experience it's fairly arbitrary which piece of advice or information medics choose to believe. Certainly no harm in having another reference to throw at them.

Wow. It took me a couple of goes to get my head around the title. Words for the sake of words. I can't be bothered. I'll wait till a few more reviews have been done and then read the meta analysis on that thanks.

I can't say I've seen this before, but then I sometimes wonder if the left hand even knows the right hand exists ket alone what it gets up to with NHS England & NiCE etc. They say: I guess this is because they don't understand that, like an iceberg, what they see and understand about ME is...

Yep. I used exercise regularly and treat myself to a massage every month or so. Since I got sick massages are just far too much even if they're lovely at the time, I'm bedbound feeling vile for weeks after. . I have tried the Perrin technique, though not at this clinic. It made me much, much...