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  1. MeSci

    Media articles on Westminster debate June 2018

    What a weird article! As for the image..what on earth is that? Basically OK though.
  2. MeSci

    Brighton MPs Support ME (Hmm)

    Thanks, @Andy.
  3. MeSci

    Brighton MPs Support ME (Hmm)

    I think I've fixed it now - for some reason it kept not working even with the full address.
  4. MeSci

    25 years battling illness - Kirsty Strain

    http://www.heraldscotland.com/news/16288892.After_25_years_battling_illness__actor_prepares_to_showcase_new_film/ There have been days when Kirsty Strain’s ME symptoms were so bad, she has been unable to get out of bed. But she is making up for those lost days now. Over the coming weeks, the...
  5. MeSci

    Kirsty Strain and Dr Charles Shepherd on Radio Scotland

    https://www.bbc.co.uk/programmes/b0b7mjqk from about 1:08-1:30 Actor Kirsty Strain talks with Stephen Jardine about having long-term ME, and Charles Shepherd contributes a little.
  6. MeSci

    Brighton MPs Support ME (Hmm)

    Source: Sussex & Kent ME/CFS Society Date: June 26, 2018 URL: http://www.measussex.org.uk Brighton MPs Support ME ----------------------- Brighton Kemptown MP, Lloyd Russell-Moyle and Brighton Pavilion MP, Caroline Lucas, who is a Patron to the Sussex & Kent ME/CFS Society have both written...
  7. MeSci

    Petition: Remove CBT/GET from NICE guidelines NOW (ALL COUNTRIES can sign)

    Well, she doesn't look anything like any photos I've previously seen (e.g. here), or anything like any of the few sufferers I've met, or me! I mean, she could be a sufferer, but not like many others. Or maybe we tend to only post positive-looking photos? It's just that posting a photo that...
  8. MeSci

    Science, Politics and the Internet: Challenges for Research into Contested Illness - Michael Sharpe

    Just been notified - and noticed - that this was in 2017!
  9. MeSci

    Science, Politics and the Internet: Challenges for Research into Contested Illness - Michael Sharpe

    I found some other pieces about 'Special Ethics' in relation to Michael Sharpe but they were earlier than this one. St Cross Special Ethics Seminar with Michael Sharpe Thursday, June 1, 2017 Event type: Academic Date: Thursday 1 June, 17:30 – 19:00 Venue: The Lecture Theatre, St Cross...
  10. MeSci

    Petition: Remove CBT/GET from NICE guidelines NOW (ALL COUNTRIES can sign)

    I don't think she looks typical of an ME sufferer.
  11. MeSci

    An exploratory study into chronic fatigue syndrome/myalgic encephalomyelitis and fibromyalgia

    Can anyone get hold of this, i.e. does anyone here have the necessary log-in permissions? Or isn't it worth bothering with? Source: University of the West of Scotland Date: November 16, 2017 URL: http://ethos.bl.uk/OrderDetails.do?did=1&uin=uk.bl.ethos.738487 An exploratory study into the...
  12. MeSci

    Media articles on Westminster debate June 2018

    Maybe it was dependent on what you answered - did you say 'ME'? Maybe it was something he didn't know anything about.
  13. MeSci

    Media articles on Westminster debate June 2018

    I've written to Caroline Lucas of the Green Party, and she has answered, but I am a long-term member and she is the only Green MP.
  14. MeSci

    Media articles on Westminster debate June 2018

    What does he mean by 'partly unfulfilled'?
  15. MeSci

    UK 21 June 2018 | 3-hour ME debate in Westminster Hall, secured by Carol Monaghan

    I noticed that - and was very pleased - and surprised - to briefly see my own Tory (Conservative) MP from North Cornwall (Scott Mann) - ask a question. He had previously said - or asked someone else to say - that he wasn't allowed to participate in such things due to his position.
  16. MeSci

    UK House of Lords/ House of Commons - relevant people and questions

    Source: UK House of Lords Date: June 20, 2018 URL: https://www.parliament.uk/business/publications/written-questions-answers-statements/written-question/Lords/2018-06-07/HL8447/ Ref: http://www.me-net.combidom.com/meweb/web1.4.htm#westminster [Written Answers] Chronic Fatigue Syndrome...
  17. MeSci

    Scottish MP Carol Monaghan and her work for people with ME/CFS

    Do you mean this one? https://www.s4me.info/threads/the-pace-trial-a-short-explanation-graham-mcphee.4669/
  18. MeSci

    Dr Myhill’s complaint to GMC about PACE authors.

    Oh right. What do you mean by 'someone'?
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