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  1. MeSci

    What is an engaging, informative, short, accurate description for ME/CFS?

    Yes - I get so tired of Xmas cards saying "hope you're well." No I am bl**dy not!
  2. MeSci

    Are Circulating FGF21 and NT-proBNP promising novel biomarkers in ME/CFS, 2020, Joan Charles Domingo et al

    Here is a link to a PR blogpost on the subject: Cancer researcher slams requirement for animal models | Phoenix Rising ME/CFS Forums There are several others. I can't write them now. Animal studies almost always fail in humans.
  3. MeSci

    Are Circulating FGF21 and NT-proBNP promising novel biomarkers in ME/CFS, 2020, Joan Charles Domingo et al

    Animal studies are a waste of time, money and lives. I have spent years studying this.
  4. MeSci

    Investigating reduced tolerance to alcohol in ME?

    I used to drink a lot - including after getting ME - then four years ago my alcohol tolerance disappeared almost completely. But I don't think I've tried anything except wine since then, so maybe I could manage something else?
  5. MeSci

    Investigating reduced tolerance to alcohol in ME?

    I would be interested in such a study, but wonder whether alcohol is just one of many food and drink (and smell, sound, etc.) intolerances that develops during ME. It's one that didn't develop for about 21 years for myself. Smell intolerance developed much earlier - near the beginning.
  6. MeSci

    Low temperature

    I'm surprised to see this in a Michael Palin article in the Radio Times: "Actually at one point my thermometer went wrong and came up as 34.2...I realised that if it was accurate I'd be dead of hypothermia." Hardly, Michael! Human body temperature - Wikipedia 34 °C (93.2 °F) – Severe...
  7. MeSci

    Covid-19 vaccines and vaccinations

    Is that the flu vaccine or the COVID vaccine? I've been offered the flu vaccine, and said no thanks (due to autoimmunity and fear of side-effects).
  8. MeSci

    Ian Harris: "Surgery, the Ultimate Placebo"

    Note that he said somewhere around the middle that animal experiments were (almost always?) no good.
  9. MeSci

    Keep a severe pwME from forced institutionalisation - petition

    Could Ron Davis help? I don't know his email address but hopefully Simon M does. At least perhaps he could add some sense to the fools who are trying to put Holger into psychiatric care.
  10. MeSci

    NICE ME/CFS guideline - draft published for consultation - 10th November 2020

    Just want to add that I don't feel able to contribute to the consultation either, although a few years ago I could have very well. I'm reassured that others are taking it on, and doing extremely well from what I am able to take in.
  11. MeSci

    Covid-19 vaccines and vaccinations

    Not sure if this is the best place to post this, but there are questions from an ME sufferer at 1.35: Coronavirus: Your vaccine questions answered by an expert - BBC News I thought that the response was rather vague.
  12. MeSci

    Urinary Tract Infections

    Another useful option would be to specify one's gender, as we have rather significant differences down there! (I think that this would be ideal in all studies on ME, and probably most other diseases too.)
  13. MeSci

    Urinary Tract Infections

    I used to get really bad cystitis (before and after getting ME), but haven't had it since I started taking cranberry juice tablets daily, not for years.
  14. MeSci

    Covid-19 vaccines and vaccinations

    Do you get other infectious illnesses? I don't seem to have for many years, except possible COVID in February-March (mainly a gout-like toe infection). That lasted a month. Or else I just get things mildly for a couple of days.
  15. MeSci

    Covid-19 vaccines and vaccinations

    No good if you neither have a car nor a cellphone!
  16. MeSci

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    Rehabilitation involving exercise appears inadvisable. Treatment also seems dodgy - no one knows how to treat it yet.
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