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Just a suggestion, as it was the cause of my muscle problems - is your daughter getting enough salt? PwME often lose a lot of salt in urine, and in my case it was very severe. I make sure to have plenty of sodium now, some in the form of sodium bicarbonate.

Copied from Covid-19 vaccines and vaccinations | Page 15 | Science for ME (s4me.info) posts 297 and 298 Written questions and answers - Written questions, answers and statements - UK Parliament Written questions and answers - Written questions, answers and statements - UK Parliament

Can I post these here? UK House of Lords/ House of Commons Questions | Page 21 | Science for ME (s4me.info)

I don't think that mine have ever worn masks. Nor to my memory have any other deliverers. The only people to have worn masks (apart from me when I remember!) are the people conducting Covid tests, and even they didn't at first.

Well, I think that quite a lot of us use saline orally - I do.

Would this explain the swelling of blood vessels when the hands are lowered in contrast to when they are raised?

Functional gastrointestinal symptoms (FGIDs)? I can't see the letter 'd' from which they get FGID.

Park up??

I think I have had this symptom since at least when I was working in London, when I used to deliberately shock myself with the metal switches that I used to operate the switchboard I worked on. (A masochistic tendency, now gone!) I also received quite nasty shocks from at least one public...

I had a phone call from my GP surgery yesterday offering the COVID vaccine. I said no thanks. Due to hearing difficulty at the time (just clearing up at last, I think) I'm not sure whether she asked whether I was saying no to ANY Covid vaccine, but I said no. Hopefully this won't mean that I...

Nor me.

God - I hope this isn't based on gut from real cats.

Very interesting from a quick look (all I can manage at the moment).

I always carry a small bottle of juice and a bar of sugar-free chocolate when I go out, to prevent excessive thirst, hunger or feeling sick.

I can't think of any offhand that are not shown in the literature, but there is almost nothing in my medical records that refers to ME symptoms, or even the fact that I have it, other than, as far as I recall, the letter from Professor Pinching from around the late 90s confirming my diagnosis...

I rarely get headaches - only occasionally.

I think I only started having occasional migraines (maybe 1 to 4 a year) after 15 or 20 years of ME. Usually there is an aura for about 15 to 30 minutes. A relatively-recent one lasted one and a half to 2 days, when I couldn't even write or speak properly, although I could think perfectly...

Will participants be in-patients? I was a bit worried about the group who have the sham infusion and take part in the exercise, i.e. possible hyponatraemia.

Major difference being that the cats are not killed, thank goodness.

Well, I took LSD about 100 times, and still easily passed IQ tests and got a Grade 1 Masters degree later. I don't think that it stops anything working. Maybe it gets extra things working? That's what it feels like.