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Not one I've ever heard of.

Is "or ale" in the title an error?!

Merged thread FND: ‘The most common condition you’ve never heard of’ - BBC News An 18-year-old woman has shared her experiences of living with the condition known as Functional Neurological Disorder (FND). Cassie Hargreaves can have multiple seizures, each lasting up 20 minutes, every day...

Most of this looks quite good, although it covers some psychological stuff including 'mindfulness' later: Fibromyalgia and pain: 'How cooking gave me my family back' - BBC News When you flick through a recipe book there are often brightly coloured photos of food, with texture and zing bursting...

Maybe the poll needs to differentiate people who have swollen lymph nodes and those who don't?

I used to get swollen neck glands when a bit knackered - often just one at a time. Now they're both swollen all the time, I think.

Animal models don't work. When I was more cognitively able I worked on this, sometimes paid. An example of my work is Cancer researcher slams requirement for animal models | Phoenix Rising ME/CFS Forums How would you test for cognitive function in a mouse???

I've read it now - clicked on the link in my own message and got it!

I can't view it for free.

Merged thread Not sure what thread to put this in - it's a young guy who was initially diagnosed with ME/CFS, then 'corrected' to long-COVID. Long Covid: 'It's like someone has piled sandbags on top of me' - BBC News Reece caught coronavirus during the first wave of the pandemic in March 2020...

I'm more concerned about long COVID - is there any evidence yet that this is more/less common among vaccinated people or people with ME/CFS?

Merged thread Simon Wessely on Desert Island Discs on 28th March 2021 - mentions CFS BBC Radio 4 - Desert Island Discs, Professor Sir Simon Wessely, psychiatrist Professor Sir Simon Wessely, psychiatrist Desert Island Discs Professor Sir Simon Wessely is the first ever psychiatrist to be...

Merged thread Middle-aged women 'worst affected by long Covid', studies find - BBC News By Philippa Roxby Health reporter Middle-aged women experience the most severe, long-lasting symptoms after being treated in hospital for Covid-19, two UK studies suggest. Five months on, 70% of patients...

I haven't had any changes made to the multiple inaccuracies I found in my record, other than, if I remember rightly, the inclusion of my letter detailing them, which I doubt whether anyone will have time to look at in addition to the official records.

Pointless using mice. What a shame - I'm interested in this. Shame for the poor mice too - they are almost certainly killed, as the vast majority of lab animals are.

Copied from Covid-19 vaccines and vaccinations | Page 17 | Science for ME (s4me.info) post 335 Source: UK House of Commons Date: March 12, 2021 URL: https://questions-statements.parliament.uk/written-questions/detail/2021-03-09/165694 Ref...

copied from Covid-19 vaccines and vaccinations | Page 17 | Science for ME (s4me.info) post 334: Source: UK House of Commons Date: March 12, 2021 URL: https://questions-statements.parliament.uk/written-questions/detail/2021-02-08/150966 Ref...

Copied from Covid-19 vaccines and vaccinations | Page 17 | Science for ME (s4me.info) post 331: Source: UK House of Commons Date: March 11, 2021 URL: https://questions-statements.parliament.uk/written-questions/detail/2021-03-02/161882 Ref...

Can I post this here? UK House of Lords/ House of Commons Questions | Page 21 | Science for ME (s4me.info)

I too find it hard. The only definite symptom I had near the beginning (I think!) was the leg weakness - difficulty walking up slopes. So I can guesstimate the year, I think.