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Now up to $46,500, 77% of total, with 5 days to go.

Cake - no thanks. (Too many carbs) Dance - no energy. So many PwME are excluded?

Wouldn't it be helpful if people gave their ages, and perhaps genders? These seem to affect the reaction.

I've donated, and might do again if there seems to be a need nearer the deadline.

$41,991, 69% of target. 9 days to go. UC Berkeley | Trial by Error Spring 2021

If they are going to test drugs, it will have to be for at least 2 years to ensure that long-term effects are noted. I think that a number of us with ME, myself included, have found that, for example, some supplements have helped a great deal for a couple of years, and then stopped.

My strength also used to be...strong! I tried arm wrestling with a male friend, who was considerably heavier than me, and he said that I would have won if he hadn't used his extra weight. And I'm under 5 ft tall!

I find that my hand-grip strength, like all other symptoms, varies considerably, notably with the time of day.

How bizarre!

$34,724 raised; 57% of total. UC Berkeley | Trial by Error Spring 2021

Merged thread (Re-)infection of patients, who have or haven't had, COVID, with COVID Not sure how to post this - not sure if the link is relevant as it comes from this page: Covid: Delhi lockdown begins amid concerns over India variant - BBC News (There are other bits of news on the same...

This is a long article about someone with EDS. Nil-by-mouth foodie: The chef who will never eat again - BBC News By Kirstie Brewer BBC News Loretta Harmes hasn't eaten for six years, but she hasn't lost her passion for cooking. Even though she cannot taste her recipes, she has a growing...

It's now $33,145, or 55% of total. UC Berkeley | Trial by Error Spring 2021

$32,950, or 54% of total, just now. 13 days to go.

Please move this if it's in the wrong thread: Rare blood clots - what you need to know Rare blood clots - what you need to know - BBC News By Smitha Mundasad Health reporter Investigations are taking place into whether cases of a rare type of blood clot are connected to both the...

Maybe should tag her? @Wilhelmina Jenkins

Just looked up Mestinon - it's pyridostigmine.

You don't need to - just put the poster's name in the box marked 'Posted by Member', tick 'Search this thread only' and click 'Search', all in the search box on the top right. You get a list of that person's messages in this thread.

Per post 44 it was the Pfizer vaccine.

Encephalitis: 'Friendly fire' in my brain saw me sectioned in error - BBC News Model Lucy Dawson was 21 when she was sectioned in error due to an illness that was difficult to diagnose. During a three-month stay on the psychiatric ward an accident would leave her permanently disabled. "At one...