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My nearest hospital is over 20 miles away, and I have no transport. I hate going there - I get lost, and it's a nightmare to figure out how to get there and back. My local doctors were incompetent, and I transferred to one about 3 miles away. They are quite good, but no good for ME/CFS, due...

I had to stop it very quickly after 2 weeks when I took it in the early days of ME, due to apparent adverse effects: https://forums.phoenixrising.me/index.php?entries/health-notes-including-suicide-attempt-1995-6.2099/. But I was taking several other drugs too, so can't be sure that symptoms...

Merged thread Kirsty Young expecting to "recover" from fibromyalgia? On today's radio page in Radio Times, re Desert Island Discs: 'She (Lauren Laverne) is only standing in while Young recovers from the condition fibromyalgia, though we're told that this could take "a number of months".'...

Did your lack of sleep perhaps cause your inability to sustain activity? (I used to have difficulty getting to sleep, and have difficulty sustaining activity in races and swimming.)

Source: Solve ME/CFS Initiative Date: October 18, 2018 Time 19:00-20:00 UTC URL: https://register.gotowebinar.com/register/3070787936016442371 Back to School Part 2: Individualized Education Plans (IEPs) for students with ME/CFS in Public Schools...

Merged thread Source: EurekAlert Date: September 27, 2018 URL: https://www.eurekalert.org/pub_releases/2018-09/mgh-rtf092718.php Research teams find widespread inflammation in the brains of fibromyalgia patients ---------------------------------------------------------- PET imaging studies...

I'm afraid I have become cynical about the time scales given, as they seem to mostly coincide with the length of time for which the funding is sought/given.

I don't think I've had any flu or infection for about the last 10 or more years, except perhaps when I was ill-advisedly given a jab during a hospital admission.

Very good. Suggested edits: (page 1) "the major problems in both the original study, or in the recovery paper". "or" should be "and". "ME is the simply the result of fear and deconditioning (the hypotheses set out in the PACE trial)". 'hypotheses' should be 'hypothesis'. (page 2) "have...

@Justy

Merged thread Chronic Fatigue Syndrome/Myalgic Encephalomyelitis (CFS/ME) is a complex and serious debilitating medical condition with a diverse range of symptoms. Profound physical and/or mental fatigue is the most well-known manifestation, while others include pain, disturbed sleep patterns...

https://www.parliament.uk/business/publications/written-questions-answers-statements/written-question/Commons/2018-09-11/173506/ Laurence Robertson To ask the Secretary of State for Health and Social Care, what recent assessment he has made of the adequacy of funding for research into the...

Good for you - well done. I'm not happy about the use of the term “animal activists”. Most such people are perfectly law-abiding, and many are highly educated - I count myself as one! Animal 'activists' are, I believe, as law-abiding as ME 'activists'.

I think that's why I take sodium bicarbonate. Unfortunately my brain doesn't work very well currently (for the last 2 and a half years) but I'm sure I've written plenty of coherent stuff on Phoenix Rising.

And some are probably like me, with dramatic improvements early on, for half a day or more, then a change in diet brings about considerable improvement for up to one or two years, then relapse again. Then a different (blood pressure) drug brings about considerable improvement but some reduction...

There's quite a lot on Bisoprolol on Phoenix Rising, for example here: https://forums.phoenixrising.me/index.php?threads/vo2max-exercise-test.18431/page-2# Some people cope with it OK; others don't. Like everything, it probably varies with gender, illness, etc., etc.

He appears to have been diagnosed with Lyme disease...but misdiagnoses are common. https://www.gofundme.com/jakesidwell

What are they called - do you know? I'm on Nebivolol, a beta-blocker, for my high blood pressure which appears to be related to my ME. There are several types of beta-blocker. Nebivolol has no obvious negative effects on me.

I tried a quick search of "cfs liver transplant" at https://www.ncbi.nlm.nih.gov/pubmed/ and didn't find anything that looked significant.

You are in no way inadequate.