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  1. MSEsperanza

    A better example for patient advocacy re fatigue from a German patient organisation -- for Multiple Sclerosis

    Thanks @Joh , you completely got my point.* Hoping I will be able to add some thoughts soon. *Edited: (even though I didn't elobarate.)
  2. MSEsperanza

    A better example for patient advocacy re fatigue from a German patient organisation -- for Multiple Sclerosis

    Lacking the resources to write more -- just would like to let you know how the German Patient Organisation for MS "AMSEL" handles the issue of false (psycho-) perceptions of illness related fatigue. Apologies for the Google translation (always funny though) - hope the key message is not lost...
  3. MSEsperanza

    New German guideline for ME published today

    :-( How embarrassing (in German: "zum Fremdschämen")! Thanks, Joh, for spreading the information. Unfortunately, terminating membership in Fatigatio is possible not before the end of 2018, but I already sent an E-Mail, and announced the formal letter which is necessary.
  4. MSEsperanza

    The Dopamine Imbalance Hypothesis of Fatigue in Multiple Sclerosis

    @Marco Please accept my apologies for the delayed response. In MS, there are many different types of fatigue, too. Actually, some clinicians distinguish and are really interested in investigating the different forms. At least, they differentiate between "mental", "cognitive" and "motor"...
  5. MSEsperanza

    Is the NIH/CDC going to use the right PEM definition for all their future research? Do patients need to act? Deadline 31 Jan

    Thank you for this very important thread. Only was able to read a small part of all the answers. Very good points already have been made to this complex issue of a complex disease. In case these were not mentioned yet, I'd like to contribute two points: 1) Symptoms of PEM may include...
  6. MSEsperanza

    The Dopamine Imbalance Hypothesis of Fatigue in Multiple Sclerosis

    Might be interesting -- whether as an endorsemennt or as a contradiction, I don't know, though: http://journals.sagepub.com/doi/10.1177/1352458517743090
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