Lacking the resources to write more -- just would like to let you know how the German Patient Organisation for MS "AMSEL" handles the issue of false (psycho-) perceptions of illness related fatigue.
Apologies for the Google translation (always funny though) - hope the key message is not lost...
:-(
How embarrassing (in German: "zum Fremdschämen")!
Thanks, Joh, for spreading the information.
Unfortunately, terminating membership in Fatigatio is possible not before the end of 2018, but I already sent an E-Mail, and announced the formal letter which is necessary.
@Marco
Please accept my apologies for the delayed response.
In MS, there are many different types of fatigue, too. Actually, some clinicians distinguish and are really interested in investigating the different forms. At least, they differentiate between "mental", "cognitive" and "motor"...
Thank you for this very important thread. Only was able to read a small part of all the answers. Very good points already have been made to this complex issue of a complex disease.
In case these were not mentioned yet, I'd like to contribute two points:
1) Symptoms of PEM may include...
Might be interesting -- whether as an endorsemennt or as a contradiction, I don't know, though:
http://journals.sagepub.com/doi/10.1177/1352458517743090
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