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I would prefer not to have the private docs involved, seconding @Jonathan Edwards' point: btw, never heard of Dr. Pfeiffer - do you have a link, @Inara ?

Thank you both, @Kalliope and @Jonathan Edwards! Such a relief to read this! -- my confidence in Lenny Jason is restored. Very good to know. It's a pity that Derek Pheby is not doing epidemiological studies himself anymore. I just had a quick glance and found his research very promising...

Thanks, @Jonathan Edwards. It was not only the BPS bits that irritated me, but also the seemingly low quality of their papers and scientific appoach. I also don't trust another member's expertise who isn't BPSophil at all https://me-pedia.org/wiki/Olli_Polo. I mean, is EUROMENE really only a...

Doesn't sound good.

This thread has been merged as both discuss Euromene I hesitated to open this thread, but after I had a second glance at one of the EUROMENE members' CV and an article co-authered by another member, I would like to share my readings with you. (I won't comment any further ATM - I thought this...

Then, what do forum members think about Michael VanElzakker's ME research project? https://because.massgeneral.org/campaign/support-myalgic-encephalomyelitis-chronic-fatigue-syndrome-exercise-challenge-study/c168141 And, what do you think, is any of the EUROMENE groups capable of pursuing the...

Looking at the BPS approach's omnipresence with regard to sociomedical issues (especially pension scheme and rehab related, also for "organic" illnesses), and searching for any sensible application of an BPS approach in the medical world, I finally came across the WHO's BPS belief system -- it's...

seems to have just moved:

Thank you, @adambeyoncelowe . Sounds really interesting. But what are "EVs"?

Have not read the (paywalled) article nor watched the video, but it would be interesting what kind of workplace adjustments were discussed. In my mild phases I probably would have benefited from two adjustments: part-time employment, and the possibility (and acceptance) of lying down during...

I agree with almost every point above, @Robert 1973 . I think we should be cautios with the term "measurable" in your last point, though: Aren't these studies based on subjective measures? And could also be interpreted as (wrong/unhelpful) "illness beliefs" or exaggerated perceptions? I think...

Unfortunately, in Germany, in most cases whether you get an "F" or a "G"-(or other "somatic") ICD-Code diagnosis is extremely relevant for doctors to assess your grade of suffering and disabilities. Actually, for any relevant medical, especially sociomedical decision, it matters whether you are...

Thank you, @Jonathan Edwards. Once again, your answers are very helpful. And once again, I am too slow to ask further, more specified questions right now. I will come back to some points maybe in related threads. Only two points for now (even though they might be more relevant for the thread...

I am particularly interested in this, so anticipated apologies in case this is going off-topic a bit. I wonder whether I understood you properly,@Jonathan Edwards: Do you think that only encephalitis deserves to be called "inflammation in the brain"? Shouldn't we distinguish between any kind...

:eek::jawdrop::wtf:

Just realized that Sir Simon changed his presidency – from being President of the Royal College of Psychiatrists to being President of the Royal Society of Medicine. (Or was he both presidents simultanously?) The latter Royal Society perhaps was so overwhelmed by his new(?) President, that it...

@Jonathan Edwards , apologies, I just realized that in this regard we already have at least one strong, very important and higly appreciated medical professor ally who came from outside the ME field. So we just need some clones of you...Any ideas how to produce them? ;)

Thank you, @Jonathan Edwards. Not very encouraging, but good to know. Is this Iain Chalmers' stance in particular, and how influential is he for Cochrane in general at present? (He appears to have a very one-sided political agenda in other social areas, too, so I thought that could affect his...