Search results

It depends on the type of cognitive effort. Back when I still got PEM, socializing and driving were the most noticeable triggers, and the PEM from driving increased with the driving conditions (icy roads at night were horrible). Number-handling didn't seem to be a problem nor did strategy...

Posts moved from this thread One thing about my ME is that I never noticed any reduction in my physical ability. I didn't do any fancy tests with fancy lab equipment, but my ability to dig large volumes of soil, or handsaw firewood, or ride a bike up steep hills, didn't seem to change. Other...

This triggers a question: do any other languages have better words to differentiate between these similar but unrelated symptoms? Does, for example, Chinese writing have different logograms for fatigued, tired, and exhausted? Hmmm, is there one for brainfog? On I suppose a related note, I...

While checking for something else, I noticed that Google's 'list of common questions' showed this: Does Graded exercise therapy work for CFS? A recent Cochrane review of graded exercise therapy (GET) for chronic fatigue syndrome (CFS) concluded that GET is effective and safe (Larun et al...

Were the tests done on patients who were severe? If not, the results might not apply to severe patients. I'm really skeptical about the precision of the results (14% rather than ~15%). To me that reported precision means they may have cranked out the numbers with no real feel for what they...

CSF may not contain the abnormal metabolites that might be occurring in ME. It's possible for them to be localized to specific parts of the brain.

Hmmm, pretty complex systems.

It's a shame that they didn't include one or more other groups, to test the comparative effectiveness of watching TV or playing computer games or eating donuts. I hereby recommend that all similar types of studies in the future should include such alternative treatments.

@DMissa , perhaps you can comment on my hypothesis about dietary niacin causing suicidal moods. I started getting suicidal moods soon after developing ME. I eventually figured out that the severity correlated with both TRP and dietary niacin. So, my hypothesis is that ME causes elevated QA...

Yup, not very useful, especially since it's anecdotal evidence. My guess is that if they'd asked people to try magic crystals or random treatments meant for disease unrelated to ME, they'd come up with fairly similar numbers.

The comments mentioned another thread about someone who benefited from it, but also a comment from someone who almost died from taking it. I remember coming across a list of treatments PWME have tried, and how they rated them. The results didn't seem all that useful, at least for trying to...

I expect there would be plenty of volunteers from the ME community who would be willing to give this a try. If it doesn't help significantly, at least it would eliminate some theories.

Yes, we still have no reliable test for actual fatigue, or even a clear definition of what fatigue is, so asking a patient "Do you feel fatigued?" doesn't help much in diagnosing a disorder. The same holds true for a lot of symptoms. "I don't feel well and I can't think clearly." is not going...

One solution is to require 'placebo effect treatments' to include a disclaimer such as: "Works just as well as snorting gummy bears! <or some other obviously silly treatment>."

Why should the same old sh*t work now? Answer: because it's got a new label!!! :rolleyes:

"We who make money selling physiotherapy services have a hammer. ME looks like a nice profitable nail."

My ME has responded to several species of longer-chained fatty acids. Palmitic made me feel worse unless I also consumed enough carnitine. CLAs improved my sleep. I haven't read anything to indicate that longer-chained FAs get broken down into shorter ones, so that's probably not how they had...

An easier solution to this problem: just redefine psychology as 'not a valid science'. If they're not following the rules and procedures of science, they don't qualify. Libraries can move psychology books to the 'fiction' section. Has psychology provided any really useful results?

My cognitively-induced PEM would occur 30 minutes to an hour or two after the trigger (chatting, driving in poor conditions), so I don't think there's enough time for housekeeping to fail, and it definitely rules out the 'sleep maintenance failure' hypothesis. I think my physically-induced PEM...

It could be that some of these genes bias other functions in the body that makes it more likely for us to get stuck in this abnormal state. Thus it might not be "this gene causes ME" but rather "this gene and that gene and this diet and this exposure to this toxin as a child, plus this stressor...