Search results

Also, at least some parts of the immune system are non-linear (think of the result a a tiny amount of allergen to some people), so the measure of one or more inflammatory markers may not say much about the severity of ME symptoms. Another complication: maybe it's not an inflammatory cytokine...

I wonder whether anyone has considered making all medical test results available as anonymous 'big data'. Imagine if this research group could access several hundred or thousand scans to provide some baselines or variabilities. Obviously there would be problems with variables in how the tests...

Treating ME symptoms is pretty difficult, because I think in most cases no one knows what the actual cause of the symptom is. I've managed to treat some of my symptoms very effectively, but those were accidental discoveries. LDN was the only treatment I took intentionally that worked, and even...

I wonder whether that simply a bias due to education levels, economic status, or some other such factor that affects reporting of ME. It might even be that doctors in that locale tend to come from different education or cultural backgrounds, which affects their diagnosing or reporting of ME...

I know a sure-fire cure for brainfog: just wait. Eventually you'll be dead and your brainfog will stop. Yah, not really helpful either. :rolleyes:

I fit the Canadian and International criteria for ME. I did have neuropathic pains (still do when ME is worse). I definitely had PEM. My ME might be non-standard, but I've read other people's replies about not having physical limitations, so I'm not the only one. Muscle problems might be a...

When I heard that the vaccine was now available in Alberta for my age group with chronic health conditions, I wondered whether ME would qualify, and whether my doctor would write something to say that I might have it. Since I'm not in any great rush to get the vaccine, I'm not worrying about...

For me it is. There are a bunch of tasks on my 'todo list' that I just don't feel like doing. However, if it became critical to do them, I could, even if it required strenuous physical work. The limitation seems cerebral: tasks requiring lots of cognitive effort, or ones with frustrating...

As far as I could tell, my ME didn't cause any effects on my muscles. I seemed to maintain the same level of strength and endurance. For me it's more of a limitation of willpower to make myself do physical or mental tasks. I'm just guessing that I wouldn't show the reduction in the...

It's not quite that simple. The perception of fatigue or pain involves signals from sensors, and communication through the nerves, and processing. Problems can arise in any of those links. Neuropathic pain, as I understand it, involves normal levels of sensor signals, but the processing cells...

I agree that it looks like cherrypicking, and only a teeny tiny cherry at that. I also agree that "perception of fatigue" is correct for the title. If they're not measuring actual physical or mental fatigue, their data is only people's self-judgements about perception of fatigue. ME doesn't...

I wonder whether this only applies to a subset of PWME. That would need a large study.

Yes, that's true, but with ME, what makes a person worse depends on the person, so there is no list of what everyone should avoid. Strenuous physical activity doesn't make my ME worse; I'd probably be worse off if I avoided exercise. There are foods and nutrients that make my ME worse, but...

Until they come up with a reliable set of limits for exercise, I think we should all avoid excessive exercise. Just to be safe. :)

Procrastination in action. Could they have prepared better for post-viral problems, or for a global pandemic in general? Of course, but budgets are quarterly or annual, and the tens of trillions of dollars extra for being unprepared won't show up on their budget sheets. Prepare for lots of...

I don't know much about the other disorders that were used for comparison, but I expect that most of them have actual medical services available: tests and treatments. We have nothing but the forums. If a new discovery about ME comes out, these forums are the easiest place to find out about them.

Just what have we learned about ME that can be applied??? Avoid things that make your symptoms worse? GET/CBT won't help? Don't expect actual help from the medical system?

I'm pleased to see that they're taking the need for CFS samples seriously.

The problem is that we don't yet understand ME, so we can't definitively say that some symptom is or isn't due to ME. I haven't heard anyone report tight muscles as an ME symptom, but that doesn't mean that it can't happen. Hopefully the right specialist will be able to figure out why the...

Looking for patterns can be a powerful tool ... but it can also lead to silly things such as random patterns of stars in the sky being interpreted as people or animals whose characteristics affect your daily life. We do need ways to measure fatigue. I think it will require a lot of research...