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  1. TiredSam

    Michael Sharpe skewered by @JohntheJack on Twitter

    And perhaps a critique of that - especially the one which pointed that it's a revealing choice of anology because with scientific trials you are not supposed to predetermined the destination and make adjustments in the steering to make sure it gets there. Can't remember who wrote it, but it was...
  2. TiredSam

    Michael Sharpe skewered by @JohntheJack on Twitter

    How marvellous to see Simon Wessely wading in to try and stop his mate Michael Sharpe making a complete fool of himself, only to shoot himself in the foot even more spectacularly when his smug remarks end up ensuring that criticism of PACE is given more publicity, including to his old friends...
  3. TiredSam

    Briefing paper for parliamentary debate.

    What a great example of transparency, engagement and taking feedback on board that was @adambeyoncelowe :thumbup:. More in one post that we've had from AfME in three months since they joined.
  4. TiredSam

    Michael Sharpe skewered by @JohntheJack on Twitter

    I'm sorry but you clearly don't understand homeopathy. It's now time to give you two oceans instead of one.
  5. TiredSam

    Treating patients suffering from myalgic encephalopathy/chronic fatigue syndrome (ME/CFS) with sodium dichloroacetate, Comhaire 2018

    That's not a very specific reference - "please see the internet"! The reaction of the body to what? That's exactly what the PACE authors say - have you read the paper? If you have and you still have any questions, you obviously didn't read it properly, so read it again.
  6. TiredSam

    Michael Sharpe skewered by @JohntheJack on Twitter

    Trolling. And given his track record he's in no position to define what is logical and what isn't. If the trial had never happened the denial of treatment & support would not have been the same. The precise purpose of the trial was to make it easier to enable such policies. Otherwise, why else...
  7. TiredSam

    Letter from parents of children with ME to paediatricians in the UK

    Indeed. I was of course making the mistake of assuming that most people are rational, whilst forgetting that there seem to be many who are only self-interested, corrupt or just batshit crazy. This is similar to the point I was trying to make earlier, whilst referring to paediatricians ...
  8. TiredSam

    Letter from parents of children with ME to paediatricians in the UK

    There is sufficient evidence to assert that there is not sufficient evidence to assert that the condition is mental or psychogenic. If anyone wants to claim that the condition is mental or psychogenic, or that there even is such a thing as a psychogenic illness, then it is up to them to provide...
  9. TiredSam

    Medicare will become insolvent in 2026, U.S. government says (2018) LA Times

    Some might find this helpful: Or for a bit more detail, this: https://www.bbc.co.uk/programmes/b07wgmfd
  10. TiredSam

    Letter from parents of children with ME to paediatricians in the UK

    I must say, anything I receive anonymously goes straight into the bin.
  11. TiredSam

    Letter from parents of children with ME to paediatricians in the UK

    Without commenting on the letter itself, I'm not quite sure I agree with this point. Paediatricians, doctors and even researchers often seem as likely to respond positively to dodgy research as sufferers and senders of letters themselves. Following my appointment and diagnosis at the university...
  12. TiredSam

    Michael Sharpe skewered by @JohntheJack on Twitter

    Blame the patient. If that doesn't work, blame the therapist. Blame the critics. Blame everybody except the trial authors, whose intuitive wisdom is beyond question.
  13. TiredSam

    Michael Sharpe skewered by @JohntheJack on Twitter

    It continues ... Note that Sharpe is posting at ten past midnight.
  14. TiredSam

    Esther Crawley's presentations (excluding the 2017 TEDx talk)

    Wow, you've got a long memory ... Funnily enough when I read your posts that's the voice I always hear you speaking in too ... what are the chances? As long as it's Les Dawson you should be ok.
  15. TiredSam

    Esther Crawley's presentations (excluding the 2017 TEDx talk)

    Super, we'll have a look at the data from your trials please. The virology blog is a very available platform and has been inviting you to get the evidence out there and clear up a few misunderstandings for quite some time. And while you're at it, ask your mates from the PACE trial to get the...
  16. TiredSam

    Esther Crawley's presentations (excluding the 2017 TEDx talk)

    "... that is our patients" is a phrase that cannot correctly exist in the English language, especially in a sentence about summarizing complicated messages. Fish in a barrel. Can't be bothered.
  17. TiredSam

    Esther Crawley's presentations (excluding the 2017 TEDx talk)

    and threaten to have them withdrawn and the children sectioned if everybody doesn't do what Esther says.
  18. TiredSam

    Worldwide Action: Sign #MEAction’s Letter to Francis Collins by May 16th

    Me too. When I'm not fit for anything else, I can lie on my sofa doing chess puzzles on my smartphone for hours. Haven't got a clue about the name of that guy on the telly I watch every week though, or what I did last weekend, or why I just thought about standing up.
  19. TiredSam

    Michael Sharpe skewered by @JohntheJack on Twitter

    Have they co-authored a paper with Chalder?
  20. TiredSam

    Michael Sharpe skewered by @JohntheJack on Twitter

    Seems perfectly consistent and logical to me. What she's saying is that ME sufferers should always listen to experts but never be allowed to listen to themselves.
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