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  1. TiredSam

    Michael Sharpe skewered by @JohntheJack on Twitter

    I assume he and his cronies can and do read this forum, including the members only section, any time they like. Doesn't bother me in the slightest. All open and transparent here at S4ME, as science should be.
  2. TiredSam

    Video: The PACE trial: a short explanation, Graham McPhee

    Another excellent video, made the point very clearly to me that taking the mean was completely inappropriate. For those of us not clever enough to nitpick, it's just right. Also solved the mystery of why people keep laughing at my trousers. A few years ago I read that the average man has 1.98...
  3. TiredSam

    The HOME study - Michael Sharpe s CBT for the elderly

    It's a celebration - can't you see the baloons? Excuse me while I move Michael Sharpe to the bottom of my list of people I'd ask to help organise a surprise party.
  4. TiredSam

    Steven Lubet: Trial by Error: Professor Sharpe's intemperate remarks for whom is he speaking?

    I think ages ago I suggested the following response on the "annoying things people say thread": Annoying person: I wish I could lie around all day like you ME sufferer: I can break your fucking legs for you if you want I haven't had any feedback from anyone who's used it yet.
  5. TiredSam

    Steven Lubet: Trial by Error: Professor Sharpe's intemperate remarks for whom is he speaking?

    GET is not safe for any ME sufferers, including mild. If they had been asked to find the most effective way to make a mild sufferer moderate, and a moderate sufferer severe, GET would be an appropriate answer. It might be safe for patients suffering from something else, but why should anyone...
  6. TiredSam

    Steven Lubet: Trial by Error: Professor Sharpe's intemperate remarks for whom is he speaking?

    A most enjoyable read. Loved the Louis XIV reference. I can only assume the question posed at the end: is rhetorical, to highlight that the over-generous assumptions at the start of the article can't be true. The answer to the question is that none of the BPS school ever even attempt to reply...
  7. TiredSam

    Michael Sharpe skewered by @JohntheJack on Twitter

    I am not a patient. You can call me a patient when it's safe for me to go near a doctor and tell them I've got ME, and they know what to do about it or at least manage to do no harm. I am not an activist, I have never been less active. "Activist" is just a label you made up. You are addressing...
  8. TiredSam

    Video: The PACE trial: a short explanation, Graham McPhee

    That video is absolutely brilliant. Not only does it strip away all the jargon so I can finally understand exactly why PACE was such a pile of crap, but watching it has increased my score from 35 to 40. I now plan to watch it another 12 times - my 'recovery' will be complete! Will you count it...
  9. TiredSam

    Michael Sharpe skewered by @JohntheJack on Twitter

    ME is the belief that you have ME, so a trial to see if you can change beliefs makes sense to Sharpe, there's nothing objective to measure. There's the tiresome business of dressing it up as science to try to stop the militant activists from getting too boisterous, but that's all just annoying...
  10. TiredSam

    The New York Times: A New Approach to Treating Hypochondria

    I don't suppose accurate records are kept about how often this persistent anxiety is fatal?
  11. TiredSam

    Researcher Interactions Science for ME written Q&A with Prof Chris Ponting

    From their blurb: The arrogance is off the scale - how do they know a symptom is not due to a physical illness in the body? Because their current state of knowledge of the body is complete, and cannot be improved upon? Because there's nothing left to learn about the body?
  12. TiredSam

    Evidence Week - Sense About Science

    Might be worth going for the WI-quality cake then, and the free calendar.
  13. TiredSam

    Action for ME have "reworked our treatment and symptom management page" and "updated our pages on GET and CBT"

    Yes, it appeals to the type A personality. And we all know how many of them have ME. What part of AfME's expertise (if we accept that they have any, for the sake of argument) allows them to make a statement like that? Have they done a customer satisfaction survey? Have they checked whether...
  14. TiredSam

    Everybody was telling me there was nothing wrong

    Perhaps just before it's too late, when you have something clearly wrong with you, which the doctor can recognise and diagnose, and then get to be an absolute hero by saving you at the last minute?
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