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  1. TiredSam

    Simon Wessely Didn't Want His e-Mail On A Blog - Here It Is on Hole Ousia

    Welcome Peter Gordon, I have just processed your membership and you can post here now if you like.
  2. TiredSam

    Michael Sharpe skewered by @JohntheJack on Twitter

    Quite. No it wouldn't. The original paper, ie the original analysis, was a mass of uninterpretability, not the data itself. It is possible to interpret the data correctly, which is what the reanalyses did. Because there isn't one. We can leave the acknowledgement of the non-existent to the...
  3. TiredSam

    Michael Sharpe skewered by @JohntheJack on Twitter

    I've just read a whole load of cfs_research's tweets and unfortunately they can't be Michael Sharpe - not found one spelling mistake so far, and there were lots of words which Sharpe would have struggled with, especially when in a temper. Obviously a close associate, perhaps in communication...
  4. TiredSam

    New Liberty Protection Safeguards will prioritise timely care of the vulnerable - Simon Wessely

    I suspect he does that on purpose, so that afterwards he can claim to have said / not to have said anything / everything.
  5. TiredSam

    Submission to the Scottish Parliament by Jonathan Edwards

    This perhaps? http://www.meassociation.org.uk/2011/04/84-of-british-neurologists-dont-view-cfs-as-a-neurological-illness-survey-results-discussed/ From 2011 (7 years ago, there's been some research progress since then), Authors from King's College, published in the Journal of Psychosomatic...
  6. TiredSam

    Submission to the Scottish Parliament by Jonathan Edwards

    Oh, a survey. I really wish people would stop referring to a bunch of questions and opinions turned into numbers as "evidence" or "data", and using it to dismiss much higher quality evidence. And what does "did suggest" mean - did they all say ME is bollocks or didn't they, and how do they know...
  7. TiredSam

    Simon Wessely Didn't Want His e-Mail On A Blog - Here It Is on Hole Ousia

    He was obviously dictating the email from his private emergency submarine on the good ship PACE, and he didn't realise that the voice to text software was still running after he'd finished dictating his email.
  8. TiredSam

    Experiences of CPET testing

    That doesn't reflect my experience at all. I am a lot more sensitive to tiredness now than I was before I got ill, and I stop as soon as I notice it. Training myself not to go into exhaustion is an essential part of learning to pace, I have been forced to recognise it or suffer the consequences.
  9. TiredSam

    Simon Wessely Didn't Want His e-Mail On A Blog - Here It Is on Hole Ousia

    Great video at the top of the comments section, this guy is really onto Wessely. Guest appearance from a concerned Ben Goldman - plus a debate in which I heard Sir Simon's voice for the first time. I assumed he'd sound posher, and was surprised to hear him speak like the dodgy geezer he really...
  10. TiredSam

    Simon Wessely Didn't Want His e-Mail On A Blog - Here It Is on Hole Ousia

    That works for me, click on "Leave a Comment" and you can read all the comments. I wonder if the site owner would like the comments to be more visible than that and needs to change a setting?
  11. TiredSam

    Simon Wessely Didn't Want His e-Mail On A Blog - Here It Is on Hole Ousia

    A masterclass in classic Wessely techniques. Attempting to shut down coversation: Must dash / I'm busy / don't have time: "This isn't you James" (first noticed being used against James Coyne a few years ago I think): Nothing to see here, move along: Deliberate vagueness about facts...
  12. TiredSam

    Marathon runner forced to quit work after developing ME claims diet change gave him his life back

    Call me a cynic but the first thing I look for now in articles like this is "what are they selling?" Nice publicity for Yorktest this time. Apart from that another n=1 story, all kinds of stuff thrown together (rather than decently researched) by the journalist, including this: Fills column...
  13. TiredSam

    Action for ME GP webinars

    Ok, regular, moderate and severe. I have regular ME. That feels better already.
  14. TiredSam

    Action for ME GP webinars

    Having to call what I have "mild" is rather annoying, but it does need distinguishing from the much worse condition many are in. I suppose we could do what fast-food restaurants do when they want to avoid describing anything they sell as "small" and describe what I have as "regular" ME - but...
  15. TiredSam

    Personalised relaxation practice to improve sleep and functioning in patients with CFS and depression: study protocol, 2018, Vollmer-Conna et al

    I wear earplugs to sleep since my wife started snoring. I have tinnitus too, but it doesn't stop me falling asleep. My current earplugs are so good that I can't hear my alarm clock, but it wakes my wife up and she gives me a push so that's ok and serves her right for snoring. If she's not there...
  16. TiredSam

    Action for ME GP webinars

    Your "I told you so" T-shirt is being printed as we speak. Well to be fair they have said we can complete their survey.
  17. TiredSam

    Action for ME GP webinars

    Thankfully I don't live in the UK and don't have to see a professional who has been "educated" by AfME. If I did, this would affect me, as I am a mild sufferer. Here is a question I asked of AfME on 3rd April: Unfortunately it remains one of the many questions put to AfME on this forum which...
  18. TiredSam

    Personalised relaxation practice to improve sleep and functioning in patients with CFS and depression: study protocol, 2018, Vollmer-Conna et al

    I think I can out-odd you there. I do chess puzzles on my smartphone every night until my eyelids droop.
  19. TiredSam

    AFME seeking feedback on NICE

    AfME seem to be refusing to take a stance. Assigning percentages to the answers of a survey of members (who aren't very well informed if AfME's webpages and the discussions permitted on their forum are all they have to go on) and calling it "data" is a long way from saying "PACE is a pile of...
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