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  1. TiredSam

    Fibromyalgia: 'Like red hot lava radiating through my body'

    7-minute video on the BBC website today: https://www.bbc.co.uk/news/av/stories-45369402/fibromyalgia-like-red-hot-lava-radiating-through-my-body
  2. TiredSam

    Action for ME: The PACE trial and behavioural treatments for M.E. [position statement]

    Harrumph. "Some" is not good enough. That should be the default assumption for all people. The normal reaction to getting ME for most people is to rest until they feel better, then try to build up slowly again. It's intuitive, nobody needs to be taught that. It what works for most ailments. Most...
  3. TiredSam

    Action for ME: The PACE trial and behavioural treatments for M.E. [position statement]

    Well I was thinking of setting up a "Feel TiredSam's Arse" booth as a christmas fundraiser, but seeing as you've been so discouraging, I won't now.
  4. TiredSam

    Action for ME: The PACE trial and behavioural treatments for M.E. [position statement]

    To be fair the apology did seem sincere and SC may have had to follow legal advice on how she phrased it. Pure speculation on my part, but maybe she ran it by some people who advised her that a sincere apology containing an admission of having caused harm could make it easier for others to...
  5. TiredSam

    Action for ME: The PACE trial and behavioural treatments for M.E. [position statement]

    A positive step in the right direction. As I started reading I thought "they're not going to get everything perfect, don't be churlish now". I was even prepared to overlook "Feel" my arse. This is an extremely late apology, and for how many years now has SC been drawing 60 grand a year, and...
  6. TiredSam

    Watt from MRC defends PACE in letter to Times

    I had to look that up, not always being in touch with UK goings on. Got it now - he said "You can't polish a Trudie". I think. Brainfog.
  7. TiredSam

    Watt from MRC defends PACE in letter to Times

    Fortunately for us part of the BPS cult ideology involves believing that it's better to do something, even if it's harmful, than do nothing, so from Fiona Watt's viewpoint jumping onto the good ship PACE to drill a few more holes in the side as it goes down probably looks like a winning...
  8. TiredSam

    United Kingdom: Science Media Centre (including Fiona Fox)

    How odd - that's never made them edit anything before.
  9. TiredSam

    BMJ: Pressure grows on Lancet to review “flawed” PACE trial

    That could be the point - a million therapists on full-time contracts, training courses, "experts" being funded for further research ... exactly what they seem to be aiming for in other areas. All fits together nicely.
  10. TiredSam

    The Times - Call for review of ‘flawed’ ME research in Lancet letter

    According to experts from the Science Media Centre - oh no, sorry, nobody bothers with them any more :)
  11. TiredSam

    Invisible disabilities: perceptions and barriers to reasonable accommodations in the workplace

    Whenever I hear the phrase "in the real world" I know I'm usually going to hear someone describe the way they see things in their version of the world, complete with biases, prejudices, delusions etc. I find the phrase rather tiresome and pompous. Buggered if I'm watching any of that by the way.
  12. TiredSam

    David Tuller: Trial by Error: Open Letter to The Lancet, version 3.0

    At least they can't use "Oh yeah? You and whose army?" any more.
  13. TiredSam

    Dimensional Personality Assessment among a CFS sample with Personality Inventory for DSM-5 (PID-5), 2018, Calvo et al.

    I'm pretty sure that the real problem is that such individuals set high standards for Mr Goldberg, so he's just getting the boot in first.
  14. TiredSam

    The MEpedia page on Myalgic Encephalomyelitis

    For those not familiar with British English a fag end is a smoking butt, which Wessely appears to be in the habit of picking up. Hope that clears up any confusion.
  15. TiredSam

    Nature: She’s the world’s top empathy researcher. But colleagues say she bullied and intimidated them

    Nope, satire by Esther12, making the point that she probably decided to study empathy because it was a completely alien and fascinating concept to her, not possessing any herself or understanding why anyone else would.
  16. TiredSam

    ME myself and I - drama series

    Yes, a "hugely positive response" could mean anything, and if it's just a response from ME sufferers it may not do much to raise awareness.
  17. TiredSam

    READ FIRST: Welcome to the MEpedia subforum!

    When I was a child and our black and white telly broke down I assumed it must have been clogged up with dead cowboys.
  18. TiredSam

    Daily Mail [severe ME day]: Teenager is left battling chronic fatigue after a parasite burrowed into her EYE

    Thought the name Skye Wheeler rang a bell - it was her article in the Huffington Post on the same day https://www.s4me.info/threads/it-seems-impossible-that-people-dont-believe-having-me-is-a-serious-illness.5287/#post-95061
  19. TiredSam

    ME myself and I - drama series

    Well I really liked it, I think it's a great project to be encouraged. Seems like a realistic portrayal (i.e. desolate) with a bit of grumpy teenage cynicism/humour thrown in. The film-maker is 28 and has had ME for 17 years, which I make to be from the age of 11, so must know what he's doing...
  20. TiredSam

    Dimensional Personality Assessment among a CFS sample with Personality Inventory for DSM-5 (PID-5), 2018, Calvo et al.

    Perfectionism as in expecting research to be conducted according to the highest scientific standards? I can see why they wouldn't like that.
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