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  1. TiredSam

    Cochrane ME/CFS GET review temporarily withdrawn

    That doesn't help. I can now feel his hot rancid breath on my neck.
  2. TiredSam

    Cochrane ME/CFS GET review temporarily withdrawn

    She has lived with the cause for 25 years.
  3. TiredSam

    Cochrane ME/CFS GET review temporarily withdrawn

    By the way, if anyone can help me get the unsavoury image of Sir Simon whispering into Clare's ear whilst she tweets out of my mind I would be most grateful. It came unbidden, and now I can't get rid of it.
  4. TiredSam

    Cochrane ME/CFS GET review temporarily withdrawn

    The reason I don't have a twitter account is because of what I would say to Clare Geralda. She is trying to drag the conversation onto mud-slinging territory where she and her ilk are most comfortable. Fortunately she is making as big an ass of herself as Michael Sharpe. The mainstream press...
  5. TiredSam

    David Tuller: Trial By Error: My Latest Letter to Archives of Disease in Childhood

    They believe in climate change? Well there's a small ray of hope.
  6. TiredSam

    Action for M.E.'s AGM and Conference 2018

    Well hopefully it's pro bono and the trustee isn't on a nice little earner.
  7. TiredSam

    Action for M.E.'s AGM and Conference 2018

    What on earth are they holding it at the offices of Allen and Overy LLP for - that must be costing an absolute fortune. Allen and Overy are one of the top 5 London law firms by revenue, a group which rather nauseatingly refers to itself as the "Magic Circle"...
  8. TiredSam

    UK CMRC 2018 Conference - Rachel Hunter (health economist)

    So 'functional disorder' means that for this patient the health service has ceased to function?
  9. TiredSam

    (not a recommendation) What if exercise makes you worse?

    Thank you. I am now thoroughly pissed off.
  10. TiredSam

    UK CMRC 2018 Conference - Prof Stephen Holgate

    Someone once gave me an egg-cup with exactly the same thing on it. I tend to stick with terse and sweary all day, but become more articulate as the day progresses. In my token effort to be more cheerful I can't help noting that at least they've booted EC off the broomstick so they can start...
  11. TiredSam

    BBC trust me I’m a doctor tests a placebo for back pain and sees significant results

    How the NHS can save even more money - give the patients nothing. All you have to do beforehand is convince them that nothing is better than something. So butter them up with a few well-placed TV progs, and make them feel all clever when they walk into their GP's saying "I insist on one of those...
  12. TiredSam

    (not a recommendation) What if exercise makes you worse?

    Ah yes, I remember that, which is why I did so much sport until I got ME. Imagine my surprise when I found out that it simply wasn't true any more once I had ME. In fact I was so surprised I thought "this can't be right", and I kept trying to make sport work it's usual magic for me, and ME just...
  13. TiredSam

    David Tuller: Trial By Error: The CFS/ME Research Collaborative Conference

    For a long time it was very frustrating that nobody, in a roomful of such bright people, thought to ask "Why, if that woman is so proudly standing up for science, has she got a big circle drawn around her feet?" So it's particularly satisfying to see her nose so thoroughly rubbed in it by...
  14. TiredSam

    Well-known, famous people with fibromyalgia

    When I was diagnosed I was told that there's no cure than there's nothing they can do for me. I was extremely impressed.
  15. TiredSam

    UK CMRC 2018 Conference - Rachel Hunter (health economist)

    Ok come on own up, which one of you posed for the picture on the front cover? Calls it CFS/ME (always makes me nervous) quotes Fukuda criteria in the executive summary at the beginning. Oh good, only one more year to go then for me. I was reading through this and thought it was making some...
  16. TiredSam

    UK CMRC 2018 Conference - Rachel Hunter (health economist)

    I'm trying to distinguish between Esther Crawley's prevelance numbers and Rachel Hunter's cost of ME numbers. Both are shockingly large numbers which could be used for advocacy, but we'll have no truck with EC's number (Ron Davis was very quickly corrected by us when he referred to it), and are...
  17. TiredSam

    UK CMRC 2018 Conference - Rachel Hunter (health economist)

    Here's a conundrum that's been exercising my mind. I'm interested in what others think. I accept that it's important to make the argument about the health costs of ME - both in terms of the costs to society (lost productivity rather than costs of non-existent or harmful treatment, which appear...
  18. TiredSam

    UK CMRC 2018 Conference - Rachel Hunter (health economist)

    Just watched the whole thing - originally to count all the "kind of"s (two in the first 20 seconds), "actually"s, "obviously"s, "err"s, but I got bored with that. Seems to be a summary of 6 poor quality studies (two by McCrone, one of which is from 2003 with 44 patients). The fact that the...
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