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    Action for ME's administration and how that affects its views about treatment

    I have been rereading that post above by @Daisymay setting out grants made to Afme. The concept which seems best to describe the process is money laundering.
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    Action for ME's administration and how that affects its views about treatment

    Sorry for the delay. I often lose track of alerts. If my memory is correct, and it may not be, it was at about this time that the MEA, depending on one's point of view, underwent either a hostile takeover or a democratic expression of members right of control. This saw CS removed for a period...
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    David Tuller: Trial By Error: My Berkeley-Backed Crowdfunding Campaign

    Sharpe apparently fails to understand the difference between advocacy and the conduct of a supposedly scientific trial. It is not entirely clear where his argument leaves him with regard to the money accepted from the DWP.
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    Action for ME's administration and how that affects its views about treatment

    Revisionist historians might reflect upon the little local difficulty experienced by the MEA which I think was at about the same time. It would have helped to render them wholly ineffective-as almost happened.
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    USA Centers for Disease Control (CDC) news (including ME/CFS Stakeholder Engagement and Communication Calls) - next call 4 Dec 2024

    Perhaps they often use swimming pools and are concerned at hygiene standards. Clearly they do not expect to suffer from ME.
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    David Tuller - Trial By Error: A Post About Andrew Lloyd

    There seems to be plenty of scope for both approaches. Isn't the nice cop/nasty cop method acknowledged procedure?
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    David Tuller - Trial By Error: A Post About Andrew Lloyd

    Odds as bad as that suggest the need for a plan. Do we have one?
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    Boom & Bust, where's the evidence?

    It would be interesting to know how often, and in how wide a group of patients, the phenomenon of the complete boom and bust cycle has been observed by those who opine on the subject. It is hard to see how a rational person in possession of the evidence could come to a psychiatric explanation...
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    David Tuller - Trial By Error: A Post About Andrew Lloyd

    One suspects that the term "hypersenstivity" may have a number of uses and may not be used consistently.
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    United Kingdom: Science Media Centre (including Fiona Fox)

    Does the Advice for researchers experiencing harassment include advice for SW to avoid Australia?We know of his concerns about ball tampering. Edit perhaps that should include EC, for reasons that are entirely beyond me.
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    Jen Brea tweets about U.K. Unrest campaign

    I suspect that the financial realities of ME necessitate consideration of the opportunity cost of any transaction
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    Jen Brea tweets about U.K. Unrest campaign

    Whilst fully understanding the annoyance that this must cause, I always have difficulty in understanding calculations of this nature. There is no way of knowing how many people who were willing to watch the film for free would have been willing to pay to watch it. It may be that the film has...
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    United Kingdom: 2007 NICE CFS/ME GUIDELINE

    Where would we have been without Malcolm Hooper and Margaret Williams? I particularly like the term heterogeneous patient population, which seems precise and accurate, rather than heterogeneous disease, which is unproven and therefor inaccurate.
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    ICO ruling: QMUL should release copies of COI statements made to the Trial Management Group

    It is just about possible to envisage a scenario in which MAs lack of disclosure originated in benign circumstances and only later turned shambolic. Presumably there must be some contractual documentation backing up DWP involvement, setting out, inter alia, when and what stage payments were...
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    Statements on conflict of interest of PACE trial TSC

    It is amazing that Lord Turnbull, Cabinet Secretary at the time could have allowed the apparent breach of civil service standards. But he did apparently allow Alastair Campbell to chair a meeting of the Joint Intelligence Committee, so nothing should surprise.
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    ICO ruling: QMUL should release copies of COI statements made to the Trial Management Group

    The view that these people take of what might constitute a conflict of interest is a subject worthy of study. Apparently membership of, for instance, the MEA is sufficient to perpetuate a lifetimes illness. Yet a psychiatrist is wholly unaffected by the interests of the organisations that...
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    ICO ruling: QMUL should release copies of COI statements made to the Trial Management Group

    That document by Hooper which Nellie linked to above gives October 2004 as the date. I will look for corroborative evidence.
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    ICO ruling: QMUL should release copies of COI statements made to the Trial Management Group

    I wonder whether we are on the wrong track with MA and non disclosure. We are thinking in terms of his relationship to the DWP. He retired in 2004 and went to his UNUM funded university post. Is that part of the COI statement that should have been disclosed?
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