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    My letter to the CDC concerning Kaiser Permanente still recommending GET

    He (et al) did say that "many sufferers have been told that physical and mental exertion is to be avoided....This may be correct in some cases, but there is as yet no way that these cases can be identified. In general such advice is counterproductive, and must be set against the following...."...
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    Childhood sleep and adolescent CFS/ME: evidence of associations in a UK birth cohort (2018) Crawley et al.

    Language is a funny thing, isn't it? "Chronic disabling fatigue" must be so much worse than mere "chronic fatigue". Oh, I see. They call it that because "children in our study were not examined by a physician". That explains it. One can even see some potential virtue in these findings. Let...
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    Is a full recovery possible after cognitive behavioural therapy for chronic fatigue syndrome? Knoop et al., 2007

    Presumably, like true scientists, they were asking this question to seek to refute the supposition that a full recovery after CBT for CFS is not possible.
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    Oxford criteria

    Medical Research Council
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    Oxford criteria

    I have been thinking about all those who put their names to this report, or allowed their names to be put to it. Some of them are surprising. There is one organisation which might be able to influence such a diverse group of researchers, and make them conform in an unexpected way. Has there...
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    New German guideline for ME published today

    Was that part of the test? Preparation for how to behave in ski-lift queues. Only joking.
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    Oxford criteria

    Having read that Discussion Paper by Wessely the answer to the original question is a definitive "yes". I had not before quite understood the extent to which the admixing of PVFS patients with those with psychiatric diagnoses was a deliberate act , done with eyes wide open, purely on the...
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    Oxford criteria

    I especially liked that bit.
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    OPEN LETTER TO DR. NYE ( Clinical Champion, Liverpool ME/CFS Clinical Network Co-ordinating Centre), c. 2007

    .....and with the "apology" to share a little laugh as the patients are probably too stupid to understand.
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    Oxford criteria

    https://www.researchgate.net/publication/20440254_Myalgic_encephalomyelitis_A_warning_discussion_paper
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    Oxford criteria

    I had often wondered about the degree of consensus. There does not look to have been much. This Wessely paper from 1989 is also worth reading to understand the background better https://www.researchgate.net/publication/20440254_Myalgic_encephalomyelitis_A_warning_discussion_paper EDIT This...
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    Oxford criteria

    It is interesting to note the date of the meeting-23 March 1990, which is earlier than I had imagined. Given that papers had been in circulation between participants, preparations must have been ongoing since at least mid 1989. Just the time that the minds of Wessely and White had turned to...
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    Oxford criteria

    Your highlighting of the "not lifelong" is interesting. On its own it could mean a condition not present at birth, but, when an onset is specified, it must mean that the disease is cured before death. This being the era of evidence based medicine it would be interesting to see the evidence.
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    OPEN LETTER TO DR. NYE ( Clinical Champion, Liverpool ME/CFS Clinical Network Co-ordinating Centre), c. 2007

    The reply appears to be a joke in poor taste by picking on one of the least important aspects of the complaint, the "verbal aggression", which Nye is clearly indicating that the complainant is believed to be displaying. DIT Believe me, when it comes to jokes in poor taste, I know what I am...
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    S4ME: Submission to the public review on common data elements for ME/CFS: Problems with the Chalder Fatigue Questionnaire

    The complexity of this makes my head hurt. It used to be known that there was, in some people, an objective feature associated with some episodes of what is now called PEM. It was observed by third parties that the patient would go pallid shortly before onset. Third parties could predict onset...
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    Fatigue syndromes. Wessely and Powell 1989

    Thanks for that contribution. I find that the difficulty in understanding group 1 lies in the comments in the initial summary. It says "Seventy two per cent of the CFS patients were cases of psychiatric disorder, using criteria that excluded fatigue as a symptom, compared with 36% of the...
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    Law Society calls for stronger safeguards to protect detained patients

    In 2006 SW gave a lecture on GWS at Gresham College London. This was interrupted by protestors. One of the leaders alleged that her computer had been hacked by authorities. She was subsequently arrested and sectioned, being held in conditions she considered inappropriate. She complained that she...
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    (Scotland) North-east family speak of ME ordeal

    Were that to happen, it would merely be evidence that powers have been vested in people who are unfit to exercise them.
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    Law Society calls for stronger safeguards to protect detained patients

    Irony of ironies. I hope the allegations following the Gresham College GWS lecture were declared as a COI. Whether the allegations were true or false they would still represent a COI.
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