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  1. MeSci

    UK: All Party Parliamentary Group (APPG) on ME news, 2020 onward

    10.00 - 10.30? Is that the starting time? It seems awfully short if it's the length of the AGM!
  2. MeSci

    Long Covid in the media and social media 2022

    Moved post Inside Health 15th March 2022 Long Covid revisited Inside Health It’s a long Covid reunion on Inside Health. We first met Jo, Neil and John in February 2021 when they were 12 months into the condition. Another year on, we catch up with them to see if they are any closer to making...
  3. MeSci

    Association of fish oil supplementation with risk of incident dementia: A prospective study of 215,083 older adults, 2022, Xiaohui Liu et al

    You don't need fish to get omega-3s. It costs a bit more, but I get my DHA and EPA supplement from Healthspan: Veg-Omega 3 1,000mg (healthspan.co.uk) "Fish obtain their DHA and EPA from consuming microalgae. Good news… we can get these fatty acids not only from eating fish but straight from...
  4. MeSci

    Gluten-free diet

    I wonder whether it might have been beneficial to also test non-patients? There is an awful lot of cr*p in most bread, and probably other food, nowadays. I seem to recall that modern gluten is also very different from how it used to be.
  5. MeSci

    2022 Petition: Denmark must follow international evidence-based guidelines for ME (anyone can sign)

    My spam folder never has anything in it! But the alternative email address worked.
  6. MeSci

    2022 Petition: Denmark must follow international evidence-based guidelines for ME (anyone can sign)

    Have all the people who say they've signed had an email to confirm signing? 'Cos I haven't! I changed the email address to one I only use if I can't get any other to work, and I think it worked - finally!
  7. MeSci

    Dialogues for a neglected illness - videos on experiences of people with ME (funded by Wellcome Foundation)

    Perhaps it should say 'Valerie Eliot Smith, a barrister with ME'?
  8. MeSci

    Psychological counselling in patients with a peripheral facial palsy: initial experience from an expert centre, 2021, Siemann et al

    Psychiatrists and psychologists are increasingly all over the radio and TV. I actually studied it for a year, not realising that it's not based on evidence. My niece has a degree (Masters, I think) in the subject. When my usual doctor was away I had the misfortune to fall victim to his...
  9. MeSci

    Psychological counselling in patients with a peripheral facial palsy: initial experience from an expert centre, 2021, Siemann et al

    What??? I have both Bell's Palsy - possibly the correct term for peripheral facial palsy - and ME. I do not need psychiatric/psychological help! (I have certainly been offered it. It is a waste of precious time.)
  10. MeSci

    Medscape: Fast Five Quiz: Chronic Fatigue Syndrome (Myalgic Encephalomyelitis)

    I noticed a couple of spelling errors: (Question 2) Hyptothyroidism (Question 5) Trazadone
  11. MeSci

    Covid-19 vaccination experiences

    Scintillating scotoma? https://www.s4me.info/threads/covid-19-vaccination-experiences.19645/page-20#post-356393 (Sorry - I see that post was also replying to you!)
  12. MeSci

    The biology of coronavirus COVID-19 - including research and treatments

    "We performed complete autopsies on 44 patients with COVID-19" gave me a bit of a jolt before I realised that they were deceased!
  13. MeSci

    Prevalence of chronic pain in LTCs and multimorbidity: A cross-sectional study using UK Biobank, 2021, Nicholl et al

    "irritable bowel syndrome (67.4%, of which 90.0% reported chronic knee pain)." ???
  14. MeSci

    Covid-19 vaccination experiences

    Did the others also have boosters? Just wondering whether the booster environment may have been infectious.
  15. MeSci

    Covid-19 vaccination experiences

    What's a C+ person, @Leila?
  16. MeSci

    ME Aware Surgical Teams UK?

    My rather old info from the ME Association re dentists recommends avoiding anaesthetics containing adrenaline. I requested this, and was fine, but I'm only moderately affected by ME.
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