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  1. MeSci

    Covid-19 vaccines and vaccinations

    I was a bit puzzled by the description of the controls, and it was only two cases - one of blood loss (aged 54) and one of strangulation (aged 86).
  2. MeSci

    The Chronic Elephant blog by hellytheelephant

    Just want to point out that leeches do have a medicinal/surgical use: "So why are surgeons using the leech therapeutically again? The medicinal use of leeches — scientifically known as hirudotherapy — re-emerged in the 1970s. Leeches have a useful function in reconstructive and microsurgery...
  3. MeSci

    The Guardian: I gave up hope of a cure for my chronic condition. And it’s made me happier than ever before

    Can someone spell out what ACT means, please? It may be obvious, but my brain is just providing a blank at present!
  4. MeSci

    Animal research for ME

    I posted this message in 2019, which links to some articles I wrote on Phoenix Rising. (I'm not capable now, but got a Masters degree in medical science.) https://www.s4me.info/threads/animal-studies-why-are-we-not-doing-them.10298/page-2#post-184247 It looks at why animal research is cruel...
  5. MeSci

    SWS And Daytime Functioning in Chronic FatiguE Syndrome (SAFFE), Nutt & co

    Interesting to see that the study was carried out by David Nutt, who is in favour of legalising psychoactive drugs. https://en.wikipedia.org/wiki/David_Nutt
  6. MeSci

    Anyone else experienced a paralysis feeling at the top of the back of the legs

    I'm not sure what feeling I get, but I have to stop and turn round and wait for about half a minute several times when walking up the long hill into town. There is only one place where I can sit and rest briefly before continuing (a low wall). Basically my legs run out of strength or energy...
  7. MeSci

    UK Parliament: ME/CFS Announcements: Statement by Health Secretary Sajid Javid, 12 May 2022

    It is here https://www.hsj.co.uk/comment/steve-barclay-is-nhs-leaderships-worst-nightmare/7032754.article but you need to register to read it.
  8. MeSci

    Sooner or Later, We’ll All Belong to the Kingdom of the Sick (Interview with Meghan O'Rourke, author of The Invisible Kingdom)

    I don't know how long appointments are elsewhere, but the approx 10 minutes in the UK plus brain fog in patients are two of the reasons why it's so hard to be diagnosed.
  9. MeSci

    Has there been any research into other coronaviruses and ME?

    I'm not thinking very clearly, and can't take in your whole message, but could ME arise from a symptomless coronavirus infection? Or from one mild enough to cause no obvious infection? I had a strange illness on the day that I moved to Cornwall in 1984 (11 years before obvious ME) - I had a...
  10. MeSci

    Efficacy of fecal microbiota transplantation for patients with irritable bowel syndrome at three years after transplantation, 2022, El-Salhy et al

    Reading the full text I note that re the faecal donor "his fecal bacteria composition was different from that of 254 healthy subjects for 14 of the 48 tested bacterial markers." I'm not able to read very well at present (or indeed usually nowadays) but were his fecal bacteria similar to...
  11. MeSci

    Intracellular Nutritional Biomarker Differences in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome ..., Krishnakumar et al, 2022

    Maybe nutrient (and other) studies should also take into account the generally low fluid levels which ME patients have.
  12. MeSci

    Bath mum describes mystery virus that left her daughter paralysed (Guillain-Barré Syndrome)

    A mum from Bath says she felt like "our world was falling down around us" after her four year old daughter was paralysed with a mystery virus. Debbie Picken has spoke out about the condition that left Clover unable to feel her legs and feet in May 2017... The MRI showed damage to her nervous...
  13. MeSci

    UK Parliament: ME/CFS Announcements: Statement by Health Secretary Sajid Javid, 12 May 2022

    The BBC - radio at least - has an extremely obsessive focus on exercise, etc. I think that it is excessively influenced by the psycho crowd.
  14. MeSci

    UK: All Party Parliamentary Group (APPG) on ME news, 2020 onward

    There's another error/misprint: On page 32 it says "As ME is multifaced in nature" which I think should be 'multifaceted'.
  15. MeSci

    Open Medicine Foundation (OMF)

    PASC is post-acute sequelae of COVID-19, according to a search. (Maybe it's well-known, but I'm somewhat dopy/thick at the moment!)
  16. MeSci

    UK: All Party Parliamentary Group (APPG) on ME news, 2020 onward

    I think that there is a word missing in this section: Chapter 5: COVID-19 and the ME Community 18) Health service commissioners should ensure that there is cooperation (between?) ME and Long Covid clinics to maximise patient benefit.
  17. MeSci

    United Kingdom: Isle of Man ME/CFS and Long Covid services (Manx, ME Support IOM)

    In case anyone wants to search here, the correct spelling is @Russell Fleming.
  18. MeSci

    Energy production and autonomic dysfunction: how are they connected?

    Well, if you have, so have I - they are the same symptoms! I think that they are typical of M.E. Don't ask me what causes them - despite my Masters degree in medical science I have pretty well lost the ability to find the info in my brain now!
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