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For years, Suffolk teenager Katy Shaw's symptoms were either misdiagnosed or not believed. Eventually she was found to have a genetic disorder that caused constant dizziness, fainting and pain when standing. After a spell in hospital, she began her A-levels two months late and using a...

Mouse models. Extremely unlikely to be relevant to humans.

True, but near the end of the article she is quoted as saying: "Just keep positive because if you don't keep positive you can't get anywhere," she said. "Just keep going even if it gets tough. Just keep going because in the end, you will be able to do it." Exactly what shouldn't be advised in...

Merged thread Girl, 10, with long Covid completes garden lap unaided after re-learning how to walk I saw the following on my local news website today and was somewhat concerned - surely there is a possibility that she could end up permanently worse? Should she not be continuing to rest...

I have IBS too, as do many people with ME, but I am being sent a spit kit. I'm pretty sure I ticked the box for IBS.

I wonder if that's an issue of differentiation between types/causes/even genders? I became really ill on biotin - perhaps permanently but at least pretty long-term. I also very rarely get migraine.

I think that my fingernails are better since taking quite high-dose calcium. I take a gram a day, plus magnesium and other things.

I would also like to thank you, @Valerie Eliot Smith. I think that you have done a lot of good for our illness, and it is only fair that you should take time and (no-doubt severely-lacking) energy for yourself. Very best wishes, and thank you so much again.

I suffered hair loss in about 2015-16, 20 years after developing ME. Quite large amounts were coming out, which was rather alarming! It eventually stopped, and I just lose normal amounts when I brush or wash it now.

I hesitated over this too (I finally re-registered, for the 3rd time, I think!). Like a large percentage of sufferers, I have a lot of misinformation on my records. I submitted a document years ago to correct the errors, but it was just attached to the records and nothing was actually changed.

I don't think I've received an email from DecodeME since 02/10/20, and haven't received today's. So maybe my participation isn't needed?

Brilliantly done, @Adam pwme. No need to use your precious energy replying.

Mice again!

Maybe put in title that it's research on mice, which is very rarely relevant to humans.

What does this mean?: "Products Regulatory Agency, before it can go on sale here."

By 'Chandler fatigue questionnaire' do they mean the Chalder one?

He's talking so fast that it's hard to be sure - perhaps someone else can check? But I think that he referred at least three times to rodent studies and talked of some of them as though they represented what happened in humans. This is not the case. He also didn't mention that xylitol is...

I watched the linked one until she started going on about 'God'! (Apologies to others who believe)

Is this an unintentional error?

CPD = Continuous professional development??