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  1. MeSci

    Special Report - Online activists are silencing us, scientists say Reuters March 2019

    Haven't got the time or energy to search for this, but: Yesterday, the New York Times published the March 13 Reuters report. See, https://www.nytimes.com/reuters/2019/04/18/world/europe/18reuters-science-social-media-specialreport.html...
  2. MeSci

    Pain & CBD (Cannabidiol)?

    I'm not aware that I have ever needed more anaesthetic than usual, and I have been a regular user for a long time. But I've never asked!
  3. MeSci

    News article - The crippling brain condition doctors say is all in your mind

    https://www.neurosymptoms.org/not-imagined/4594358022 "You don’t have a disease..."
  4. MeSci

    UK House of Lords/ House of Commons - relevant people and questions

    Source: UK House of Commons Date: April 11, 2019 URL: https://www.parliament.uk/business/publications/written-questions-answers-statements/written-question/Commons/2019-04-08/242027/ Ref: http://www.me-net.combidom.com/meweb/web1.4.htm#westminster [Written Answers] Chronic Fatigue Syndrome...
  5. MeSci

    UK House of Lords/ House of Commons - relevant people and questions

    Source: UK House of Commons Date: April 12, 2019 URL: https://www.parliament.uk/business/publications/written-questions-answers-statements/written-question/Commons/2019-04-04/240991/...
  6. MeSci

    Royal College of Physicians article: "Do you really believe in ME?" by Dr Nina Muirhead

    What do you think of this statement: "The reality is ME/CFS is a serious, heritable, neurological condition and I was shocked to discover subsequently that my grandmother had died from it aged 42." I had not heard of it being heritable. I wonder whether it was on her grandmother's death...
  7. MeSci

    UK House of Lords/ House of Commons - relevant people and questions

    https://www.parliament.uk/business/publications/written-questions-answers-statements/written-question/Commons/2019-04-04/240991/ Sharon Hodgson To ask the Secretary of State for Health and Social Care, how much funding the Government has allocated to services used by patients with ME in the...
  8. MeSci

    Using the forum as a blog

    I have a blog on Phoenix Rising here: https://forums.phoenixrising.me/blogs/blog/mesci.6237/ which I'm adding to as I am able (many years of ME to go!), and it's not clear (to my commonly-fuzzy head) whether one can post blogs here in forums other than 'General ME/CFS News' and whether one can...
  9. MeSci

    CFS chapter in Cambridge Handbook of Psychology, Health and Medicine

    This link may be useful: Book: Cambridge Handbook of Psychology, Health and Medicine Year 2019, Section 108, Page 455 Paper: Chronic Fatigue Syndrome Authors: Cairns R, Willis C, Chalder T. URL: http://books.google.com/books?id=_r-PDwAAQBAJ&pg=PA455
  10. MeSci

    USA: URGENT ADVOCACY ACTION! House FY20 Funding Requests

    Source: PR.com / SMCI Date: April 3, 2019 URL: https://www.pr.com/press-release/781494 'America's Hidden Health Crisis' Heads for Congress on April 3rd Demanding Action for Millions with ME/CFS ---------------------------------------------------------- Hundreds of severely ill people with...
  11. MeSci

    NIH Request For Information: Soliciting Input on How Best to Advance ME/CFS research

    (forwarded message) Source: National Institutes of Health Date: April 3, 2019 URL: http://list.nih.gov/cgi-bin/wa.exe?A0=NIH-MECFS_INFORMATION News from NIH: DEADLINE EXTENDED: Request for Information: Soliciting Input on How Best to Advance ME/CFS Research...
  12. MeSci

    Transcultural, transdiagnostic and concurrent validity of a Control Scale of ME/CFS, FM & Type 1 Diabetes

    Source: London South Bank University Preprint Clinical Psychology and Psychotherapy Date: March 25, 2019 / April 21, 2020 URL: http://researchopen.lsbu.ac.uk/3060/ Transcultural, transdiagnostic, and concurrent validity of a revised Metacognitions about Symptoms Control Scale...
  13. MeSci

    ME/CFS Site The Jackson Laboratory (USA)

    The Jackson Laboratory has just released a new launch page on their website about ME/CFS: https://www.jax.org/personalized-medicine/mecfs-research
  14. MeSci

    David Tuller crowdfund: Trial By Error: Reporting on ME/CFS and Related Controversies

    I use Firefox, and if I click 'International' I get the world map, where I can find numbers of donors per country. Pleased to see that there are 70 from the UK! (and only 21 from the USA!)
  15. MeSci

    UK House of Lords/ House of Commons - relevant people and questions

    Source: UK House of Commons Date: March 28, 2019 URL: https://www.parliament.uk/business/publications/written-questions-answers-statements/written-question/Commons/2019-03-25/236446/...
  16. MeSci

    UK House of Lords/ House of Commons - relevant people and questions

    Source: UK House of Commons Date: March 28, 2019 URL: https://www.parliament.uk/business/publications/written-questions-answers-statements/written-question/Commons/2019-03-25/236488/ Ref: http://www.me-net.combidom.com/meweb/web1.4.htm#westminster [Written Answers] Chronic Fatigue Syndrome...
  17. MeSci

    Virus tricks the immune system into ignoring bacterial infections

    26 March 2019 Can phages save us as antibiotics stop working? People Fixing The World How phages – viruses that kill bacteria – are saving lives. Tens of thousands of people die every year because bacterial infections are becoming resistant to antibiotics. That number is expected to explode...
  18. MeSci

    Advances in ME/CFS: Past, Present and Future; Friedman, 2018-19

    Source: Frontiers in Pediatrics Preprint Date: March 19, 2019 URL: https://www.frontiersin.org/articles/10.3389/fped.2019.00131/abstract Advances in ME/CFS: Past, Present and Future -------------------------------------------- Kenneth J. Friedman1 - Kenneth J. Friedman, Medical School...
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