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I received a card today too - didn't notice who from but it was probably the same. Such a waste of resources.

This was broadcast on Tuesday - sorry it's taken so long to notify. I haven't listened to it. "In this episode, we meet Kirsty, a young, fit and healthy mum, who is suddenly paralysed and incontinent. Multiple tests are unable to find any obvious cause. She is eventually diagnosed with...

I wasn't sure what LTSE was, but a search on this site says that it's Long term symptom exacerbation.

Well, most of the symptoms are disabling, aren't they? It just seems a strange thing to cite.

Is the bar for 'disabling' an error?

I gained a Bachelor's degree and a First Class Masters degree in the early days of ME. Now I am worse affected both physically and mentally - no way could I do it now. I used to play Countdown every day, and used to collect firewood and look after and sell plants. Again, this was in the early...

This is the wrong way to go. Animal models do not work.

At last! I've received an email from DeCode ME saying: "Dear Participant, We've received your saliva sample and are checking it to make sure we can extract your DNA from it. Thank you for sending it. We will let you know once your DNA has been successfully extracted, or if we need you to...

How soon would you expect Decode ME to reply to an email? I sent mine enquiring about the lack of response to my sending my sample, on the 14th.

I haven't received acknowledgement despite sending my sample over a month ago, so I've emailed them: "Dear Decode ME, I sent my sputum sample to you on 13th September, but haven't received acknowledgement from you. Could you tell me whether you have received it? Thank you." Having just...

I am NOT having a gastroscopy! I gave up gluten many years ago without being tested. It has helped a lot, I think, and is the non-coeliac type...

"which will lead to the development of specific drug treatments". Rather optimistic!

You put an extra 's' in 'patients' in the title.

I raised awareness of this site at least as far back as 2013 on PR: https://forums.phoenixrising.me/threads/horrifying-article-in-sunday-times.23050/page-8#post-353576

It's a lot more than concern. I gained a Masters degree in science, and focused particularly on the reliability, or rather lack of it, of animal studies. An awful lot of science papers are rubbish. Yeast isn't an animal, as I expect you know.

I received this too. Mostly non-recyclable, I think.

I'm pretty sure that all transgenic animal models will do is cause animal suffering. They will not confirm or identify human effects.

$54,377 raised, 84% of target. 4 days left. https://crowdfund.berkeley.edu/project/33528

I'm actually relieved that this is a common problem - hopefully it means that I don't have to worry so much!

This article mentions the fact that there is too much specialism so that people are seen by numerous 'specialists'. For example: "As an 11-year-old being told the tests aren't showing anything and your parents are hearing that, there's no thoughts the doctors are wrong because they've done all...