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I'd be interested in hearing about circulatory disorders in ME/CFS, if they include hypertension.

Source: Chapter in Book 'Long term: essays on queer commitment' Date: June 14,i 2019 URL: http://sro.sussex.ac.uk/id/eprint/84301/ Unhealthy attachments: myalgic encephalomyelitis/chronic fatigue syndrome and the commitment to endure ----------------------------------------------------------...

This is a report on the research - I think that the paper can be accessed from it. Source: McGill University Health Centre Datd: June 19, 2019 URL: https://muhc.ca/newsroom/news/gut-bacteria-associated-chronic-pain-first-time Ref...

Merged thread Source: U.S. Federal Register Vol. 84, #117, pp 28227-28235 Date: June 18, 2019 URL: https://www.federalregister.gov/documents/2019/06/18/2019-12682/schedule-for-rating-disabilities-infectious-diseases-immune-disorders-and-nutritional-deficiencies...

Just heard an interesting programme featuring descriptions of UK disability tribunals, like the fact that (I think) 2/3 of rejections for disability get overturned at these tribunals, plus suggestions of future online versions. It included someone with fibromyalgia (among other things) and a...

https://www.parliament.uk/business/publications/written-questions-answers-statements/written-question/Commons/2019-06-19/266885/ Stephen Morgan To ask the Secretary of State for Health and Social Care, what assessment he has made of the effectiveness of the existing NICE guideline on myalgic...

Morven-May MacCallum says her life is still "completely dominated" by Lyme disease, nine years on from starting treatment. About 200 people a year in Scotland are recorded with the disease but the true number is thought to be much higher. The disease is a bacterial infection spread by a bite...

Source: Psychology of Men & Masculinity Preprint Date: April 30, 2019 URL: https://www.dora.dmu.ac.uk/handle/2086/17973 'The real me shining through M.E.': Visualizing masculinity and identity threat in men with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome using photovoice and IPA...

Source: Proactive Investors Date: June 10, 2019 Author: Andrew Kessel <andrew.kessel@proactiveinvestors.com> URL: https://www.proactiveinvestors.com/companies/news/221797/aptinyx-stock-soars-on-positive-phase-2-results-for-its-fibromyalgia-treatment-221797.html Aptinyx stock soars on...

"We know it affects about 80 per cent of women compared to 20 per cent of men," Nicholl said. Not very well put. Sounds like 80% of women can expect to be infected!

Source Science Nordic Date: June 10, 2019 Author: Ingrid Nuse URL: http://sciencenordic.com/cancer-drug-doesn%E2%80%99t-work-chronic-fatigue Cancer drug doesn't work for chronic fatigue -------------------------------------------- Cancer drug rituximab has no effect on chronic fatigue...

I thought I'd put this in 'News' rather than 'Research' as it looks a bit amateurish. (Maybe Julia Newton was in a teaching capacity?) (He repeatedly misspells 'encephalomyelitis'.) Source: International Journal of Therapy and Rehabilitation Vol 26, #5 Date: June 6, 2019 URL...

Just wondering - could our multitude of 'normal' results be related to low blood volume?

Just remembered - also couldn't swim more than a width or a length at secondary school - when I was still 'fit' and over a decade before getting ME - without having to stop. I tried everything, but nothing worked - varying strokes, concentrating on breathing, etc.

I used to be able to run fast, but often only for short distances (e.g. at school, and I didn't get ME until I was 42). I'm not sure whether the ME leg fatigue was obvious straight away; I think it was more gradual in development. I remember being puzzled by the extreme fatigue in my leg...

I can only find one result for myself, from 2016, and CRP was normal for me too - less than 1. I had been ill for 21 years.

Date: June 7, 2019 Author: Tasneem Nashrulla URL: https://www.buzzfeednews.com/article/tasneemnashrulla/stanford-professor-fired-sexual-misconduct A Stanford professor fired over sexual misconduct allegations cited his 'Hispanic Heritage'...

Source: Stanford Daily Date: June 6, 2019 Author: Julia Ingram & Claire Wang URL: https://www.stanforddaily.com/2019/06/06/medicine-professor-fired-for-sexual-misconduct-apologizes-cites-cultural-differences-for-conduct/ Medicine professor fired for sexual misconduct apologizes, cites cultural...

Source: UK House of Lords Date: June 5, 2019 URL: https://www.parliament.uk/business/publications/written-questions-answers-statements/written-question/Lords/2019-05-21/HL15894/ Ref: http://www.me-net.combidom.com/meweb/web1.4.htm#westminster [Written Answers] Medical Treatments: Children...

I thought I'd seen this on this site but can't find it. Source: Annals of the Rheumatic Diseases Vol 78, Suppl #2 Date: June 2019 URL: https://ard.bmj.com/content/78/Suppl_2/1495.2.abstract {Annual European Congress of Rheumatology, EULAR 2019, Madrid, 12-15 June 2019] Investigating the...