Search results

  1. forestglip

    Review The efficacy of antivirals, corticosteroids, and mAbs as acute COVID treatments in reducing the incidence of long COVID, 2024, Gangqiang +

    The efficacy of antivirals, corticosteroids, and mAbs as acute COVID treatments in reducing the incidence of long COVID: a Systematic Review and meta-analysis Gangqiang Sun, Ke Lin, Jingwen Ai, Wenhong Zhang Abstract Background: Whether treatment during acute COVID results in protective...
  2. forestglip

    Novel characterization of endogenous transient receptor potential melastatin 3 ion channels from Gulf War Illness participants 2024 Marshall-Gradisnik

    ABC (Australia): Griffith University researchers believe cellular door dysfunction is the cause of long-misunderstood Gulf War Illness By Janelle Miles and Emma Pollard "In a world first, Australian researchers have identified a significant defect in the cells of Gulf War participants they...
  3. forestglip

    News from the USA, United States of America

    Wow, pretty much all of the replies are mocking her, saying stuff about LC is not real, it's all long vax...that's disturbing.
  4. forestglip

    Cardiopulmonary and metabolic responses during a 2-day CPET in [ME/CFS]: translating reduced oxygen consumption [...], Keller et al, 2024

    I think the inclusion criteria line of thought was mostly just speculation by me. I wouldn't put too much stock in it. But yes, it was an attempt to explain why the differences seem smaller with deconditioned controls. Although, even though they are smaller, this is yet another study showing...
  5. forestglip

    A Possible Reversible Cause of Cognitive Impairment: Undiagnosed Cirrhosis and Potential Hepatic Encephalopathy in [...] Dementia, 2024, Silvey et al

    A Possible Reversible Cause of Cognitive Impairment: Undiagnosed Cirrhosis and Potential Hepatic Encephalopathy in Patients with Dementia Scott Silvey, Richard Sterling, Evan French, Michael Godschalk, Angela Gentili, Nilang Patel, Jasmohan Bajaj Background Dementia and hepatic encephalopathy...
  6. forestglip

    Avoiding crashes as a treatment

    What is ART?
  7. forestglip

    Avoiding crashes as a treatment

    I think this might be more intense than pacing, as it's difficult to be cognizant of one's exact limits, and crashes still happen. I assume this would be doing far less than one feels they can handle so that there is zero chance of a crash.
  8. forestglip

    Avoiding crashes as a treatment

    Not sure if there are many other examples, but Ron Davis mentions one potentially successful case (or could be spontaneous remission) of someone recovering after avoiding crashes for a year: "One researcher had ME and she didn't have a crash and after a year she got better."
  9. forestglip

    Works of fiction where characters have ME/CFS

    Merged thread I started rewatching one of my favorite shows, House M.D., and saw this lovely scene in the first episode (starts at 1:23):
  10. forestglip

    Long Covid drug BC-007 research news

    Estimated study completion date moved up from 2025-05-31 to 2024-11-30. Follow-up period reduced from one year to 90 days. Added this to inclusion criteria: ClinicalTrials.gov
  11. forestglip

    Dianna Cowern, Physics Girl, fundraiser 2024 and other news

    Email from OMF: "We are overflowing with gratitude and hope following the incredible live-streaming event hosted by Dianna Cowern (Physics Girl) and her outstanding team. Your engagement and generosity have shattered our expectations. What started as a goal to raise $10,000 turned into a...
  12. forestglip

    Recovery from Exercise in Persons with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) 2023, Moore, Hanson et al

    "On social media, some patients have posted that they experienced a very prolonged recovery from the 2-day CPET. Given the potential for prolonged and potentially severe disability in ME/CFS, these anecdotes have prompted hesitancy to undergo a 2-day CPET. As a response to such patient advocacy...
  13. forestglip

    Using deconditioned people as controls

    Yeah, that's a good thought. I'd feel a lot better about such a study if they put activity trackers on everyone for maybe a week to make sure the activity levels are at or below pwME, and didn't just use questionnaires.
  14. forestglip

    News from PolyBio Research Foundation

    I thought David Putrino's talk was interesting, so I had Claude.ai make a summary to share here: Context Long COVID and other complex chronic illnesses present over 200 symptoms affecting multiple organ systems Traditional large-scale monotherapeutic trials are often ineffective due to the...
  15. forestglip

    Multikingdom and functional gut microbiota markers for autism spectrum disorder, 2024, Su et al

    Multikingdom and functional gut microbiota markers for autism spectrum disorder Published: 8 July 2024 Qi Su, Oscar W. H. Wong, Wenqi Lu, Yating Wan, Lin Zhang, Wenye Xu, Moses K. T. Li, Chengyu Liu, Chun Pan Cheung, Jessica Y. L. Ching, Pui Kuan Cheong, Ting Fan Leung, Sandra Chan, Patrick...
  16. forestglip

    Tool to see daily view counts on popular pages of MEpedia

    This seems unlikely now since there has been no similar rise on the day of or after Dianna's live stream which was probably much more popular: This is weird. Looking at the most viewed pages over the past week, almost all of them start with "A". Is someone reading every page in alphabetical...
  17. forestglip

    Navigating the medical system as a beginner with ME

    Just had my appointment with the DO. It went well. I had been mentally preparing for worst case scenarios of the doctor trying to convince me I just have depression and me trying to convince her it's not. But she sees and understands my viewpoint. That I'm not expecting any treatments to do...
  18. forestglip

    The Washington Post: How American health care has been failing women for centuries (review of a book written by Jennifer Lunden)

    CentralMaine.com: "Gripped by a mysterious illness, a Mainer finds an unexpected kindred soul" By Frank O Smith "'American Breakdown' is the true story of Mainer Jennifer Lunden’s quest to get medical help for a mysterious, debilitating illness. It is more than just a dark, absorbing 27-year...
  19. forestglip

    Cardiopulmonary and metabolic responses during a 2-day CPET in [ME/CFS]: translating reduced oxygen consumption [...], Keller et al, 2024

    I think we agree, but the paper seems to equate them: Todd said: And I don't know why he's sure that's the case, but it seems like a distinct possibility since VO2 isn't precisely tied to fitness.
  20. forestglip

    Cardiopulmonary and metabolic responses during a 2-day CPET in [ME/CFS]: translating reduced oxygen consumption [...], Keller et al, 2024

    I'm not really following what he's saying either. But in terms of matching, shouldn't it be established that VO2 level basically equals fitness level and no other disease processes influence the correlation? Otherwise, they're not really matched for fitness level, right? Has that been established?
Back
Top Bottom