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Of the hundreds of videos, it doesn't seem like any deal with psychology, at least based on the titles. I assume they try to stick to what is known clinically or physiologically with very high certainty. So I was thinking there might not be nearly enough "known" information about ME for it to...

That might be interesting. I'll see if I can send an email requesting that. [Edit: Sent!] Yeah, I saw that. Would be good to hear the opinions of some specialists about the channel. Looks to be 9 or 10 medical students on the team as "medical editors". I get the impression it's targeted mainly...

I just want to recommend the channel Ninja Nerd for learning about biology and medical concepts. I watched half of their video so far explaining multiple sclerosis, and the host is entertaining and appears to be very knowledgeable, and there are a lot of visuals. The channel has a ton of content...

Data-independent LC-MS/MS analysis of ME/CFS plasma reveals a dysregulated coagulation system, endothelial dysfunction, downregulation of complement machinery Massimo Nunes, Mare Vlok, Amy Proal, Douglas B. Kell, Etheresia Pretorius Published 16 July 2024 Abstract Myalgic...

Wouldn't it make more sense for all 2-day CPET research to be done 48 hours apart instead of 24? Correct me if I'm wrong, but most people's PEM lasts at least a few days. And while some will already be experiencing PEM after 24 hours, for many others, it's closer to 48. Doing the second test...

The Sydney Morning Herald: I was diagnosed with breast cancer. I’m glad it wasn’t long COVID By Margaret Gordon "Over the next two weeks, tests confirmed I did have cancer and a week after that I began treatment. Treatment sucks. There’s no other way to put it. I’m having chemotherapy and...

Medscape: Long COVID & Chronic Fatigue: The Similarities are Uncanny "Using blood samples from the UKMEB, the researchers are now investigating this potential biomarker with improved techniques and a larger patient cohort, including those with mild/ moderate and severe forms of ME/CFS. So far...

"At its core, the new FDA rule change allows any IRB to broadly assume the FDA's own exemption power, dubiously granted under the 21st Century Cures Act of 2016, to grant exemptions to informed consent requirements based on "minimal risk." Based on vague guidelines, it effectively gives...

Swiss cyclist Marlen Reusser: "Hello everyone, unfortunately I have to announce today that I will not be able to take part in the Olympic Games in Paris. I suffer from a so-called post-infectious syndrome caused by a viral infection... the cause of this syndrome is unclear... in February of...

Sydney Morning Herald: ‘It was taken away from me’: The Olympic champion who spent a year battling long COVID By Adam Pengilly "Matt Wearn won an Olympic gold medal... [in regatta]" --- "For any Olympic gold medallist, there can be a range of emotions in the months afterwards: elation...

Yeah, it doesn't seem to matter which political party, most of the top replies are hate. Someone looking at the replies does not get anything like an accurate representation of public sentiment.

Test markers of pathogen levels (RNA, antibodies, etc) on both days of a 2-day CPET to test the hypothesis that ME is related to live pathogen persistence and that PEM is an increase in pathogen levels/proliferation, which would explain the delayed symptoms after exertion and the flu-like...

I'm not sure if this has been attempted, but if not, I'd like to see someone try to make an in vitro 2-day CPET. It might be possible to extract a few muscle cells from people with ME, stimulate them with electricity to simulate exercise, and see if their responses on day two differ from non-ME.

I found a couple journals that are dedicated to environmental toxicity and related topics. Journal of Exposure Science and Environmental Epidemiology "JESEE publishes novel results and significant advances in exposure science, exposure analysis, and environmental epidemiology to understand...

@DMissa was interviewed on the Triple R radio station, 14 July 2024. Audio link AI summary of interview: Interviewee: Dr. Daniel Missailidis, research officer in molecular cell biology at La Trobe University Topic: Infection-associated chronic diseases, including long COVID and chronic...

GoFundMe: Your Support is Needed to Validate Long Covid Biomarkers "Long COVID Foundation is organizing this fundraiser. LCAP and Long COVID Foundation are excited to announce a chance for the community to fundraise and help validate a non-invasive Long Covid Biomarkers* test capable of FDA...

Is this potentially huge for MS? Protocol: A Study of Anti-CD19 Chimeric Antigen Receptor T-Cell ( CAR-T) Therapy in Subjects With Non-relapsing and Progressive Forms of Multiple Sclerosis Paywalled article in Nature: CAR-T therapy for multiple sclerosis enters US trials for first time

Long-term residential road traffic noise and mortality in a Danish cohort, 2020, Thacher et al - "this study adds to the body of evidence linking exposure to road traffic noise with higher risk of mortality" Transportation noise exposure and cardiovascular mortality: 15-years of follow-up in a...

The more I learn, the more mad I get. The world is being drenched in thousands of newly created chemicals and every day more are being created. For some reason, the standard operating precedure is to release new chemicals after cursory safety studies, then decades later when people start...

American Scientist: The Rise of Parkinson's Disease Published 2020 By E. Ray Dorsey, Todd Sherer, Michael S. Okun, Bastiaan R. Bloem "Neither our increased awareness of the disease nor our lengthening life spans can fully account for the upsurge in diagnoses that we now face. Our knowledge of...