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There has been two relatively decent articles on the long term effects of covid on persons in Norway now, both single cases. One 16 year old girl who has developed POTS, and one nurse who has become disabled and is testing different alternative treatments (has tried HELP apheresis and recently...

Joel has written a short thread in Norwegian saying that their paper does only show that the WHO definition has little validity, not that LC doesn't exist. I haven't seen a reply to questions on why Recovery Norway isn't mentioned.

Apparently there are new symptoms one should use to recognize long covid: Forsker: Dette er de nye tegnene på long covid Researcher: These are the new signs of long covid Also included in the article that most people get well after six months-a year (unfortunately without mentioning it is not...

Students can get sick leave, but since attendance is often not mandatory and the work day can be very flexible it can be easy to hide. For example the statistics of students being late in their education does not say anything about why as far as I know (the stats are even so bad that if someone...

I think this will vary greatly based on university and the institute, as the building mass and ventilation will have vastly different standards. Not to mention class size. When I started 60 persons had been taken up for a bachelor's degree that only had 15 spots. As one could guess class room...

Today in Khrono there is an article about the record high sick leave in Norway. On average in universities sick leave has increased 20% from 2021 to 2022. Amongst other reasons due to "covid and long term effects of covid". In Norway as a whole 2022 had the highest amount of sick leave since...

This definition of PEM seems more like PE fatigue to me:

Rest assured as we have been told several times that after a study is published its weaknesses and limitations will be clearly stated and if the methodology is bad it could never be misused in any way! Fitting for April's fools, really. (Although this was not said about this particular study...

I haven't read the study, but when the first author says in the tweet "PCR and antigen testing have been performed at two timepoints" made me believe they had taken PCR and antigen tests, and also did the proxy testing by asking about smell/taste.

Here is one from twitter: Siri Ann Mauseth: The methodology has weaknesses. To use PCR and antibody tets have several pitfalls. Such as infected being labeled as controls https://nature.com/articles/s41579-022-00846-2 Joel Selvakumar: There are clearly weaknesses - but I don't know if I agree...

This has been pointed out to them. Together with studies on how antibodies are not a good indicator of previous covid infection.

I am so sick of this.

Why should they when "leading experts" don't :banghead: I'm still annoyed about how Wyller got a grant to study adolescents with CFS, and then when the music study came out it was about adolescents with CF that may go on to develop CFS.. :confused:

For some of us symptoms are at their best with menses ;) Menses and follicular phase are usually when I function the best. I know others who say the same, but also here there is a social constraint that you shouldn't talk about it, and the added "women are at their worst with menses!" social...

In Norway it takes ~five years on average to get an endometriosis diagnosis. I don't doubt many are misdiagnosed with something else along the way. And chronic fatigue gets conflated with chronic fatigue syndrome.

My ferritin levels have never been an issue. Though I want to point out that ferritin reference ranges have been based on "expert opinion" and some argue the lowest range is too low. Quoting myself from another thread where ferritin levels were discussed:

A post containing tweets on the topic of a seminar held in Oslo on LC/ME/CFS has been moved to the seminar's own thread on the forum: Norway: Article about ME seminar with security

I hope it works out for you. Frustrating how it is so important to avoid a single person not being worthy of support receiving it in any form rather than making support systems easily available to those who could benefit from them.

Someone has shared the invitation, speakers and participants following a FOI request on twitter:

When I had timeseries metabolome data there were large variation from measurement to measurement on a lot of the compounds (in total we had 1700+), not difficult to find a difference between two groups by chance. Data was then measured every two, four or ten weeks. We even had near perfect...