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Sigh..

Thanks for adding Kalliope! This image from the article at FaFo's own page of what experience pwME have with various treatments they have to do is quite damning. Translated color scale: "Very negative", "Negative", "Neutral", "Positive" "Very positive" Translated y-axis (from the top)...

I'm happy to see this published, the results have been mentioned in various talks by the researchers already. I don't have the energy to read it now though.

Full title: Do diagnostic criteria for ME matter to patient experience with services and interventions? Key results from an online RDS survey targeting fatigue patients in Norway Abstract: Public health and welfare systems request documentation on approaches to diagnose, treat, and manage...

Right. With the new guidelines in Norway Canada criteria is supposed to be used, which doesn't mean PEM is necessarily considered but if data is older this problem would likely be larger? I think the study that showed 80% of those that were sent on to specialists didn't have ME came from before...

Go Søraas :) Norske eksperter uenige om long covid-studie Norwegian experts disagree on long covid study Wyller again with the "biological, psychological and social mechanisms are important".

Primary care in Norway doesn't use G93.3, but A04, which is not ME-specific but rather "fatiguing illness" or similar. This is a bit problematic since after 2014 (or thereabout) the new guidelines for ME/CFS says that patients should be diagnosed by their primary doctor not a specialist. So I...

I think it might be important to note that education doesn't necessarily equal high pay in Norway, and we have a highly educated population.

I hope Søraas speaks out more often going forward. I think there are more than a few who have been surprised at how they are met when they try to talk about long term effects. More people to experience (albeit to a lesser extent) what patients have been living with and talked about.

I couldn't stomach reading more in Khrono about this. Not surprised there were no critical questions ;) Good to see Wyller acknowledge they keep to themselves and reference each others work. I don't see what this particular study contributes though.

The number of times people think my dad is an idiot since he enjoys working in primary industries, only to find out that he has also been an associate professor in his field... :confused: Makes me mad to think about how those that are not also associate professors are treated.

I also quickly default to muscle weakness and problems with restitution if someone asks what's wrong.

FaFo and Sintef will host a workshop 4th of May 2023 "to discuss how the data collected as part of the Tjenesten and MEg project can contribute to highlight the situation of those living with severe ME and their carers". The event will be streamed. Link to invitation on the project website (in...

This too. In the disability numbers and sick leave, we see nurses and teachers are overrepresented - people who were exposed to covid at higher rates than the rest of us. While there probably was some of this, especially at the start of the pandemic there were few deaths here. We've had 4000+...

With few deaths overall, finding a signal would be hard. We have generally good health in Norway, and with our hospitals not overrun like they were many other places patients could get better care since hospital staff had fewer patients to care for at a time. And with "Come back in 3-6 months...

At the beginning of the pandemic we had measures such as mask mandates, recommendations to not be more than five people from different homes/households visiting each other (children were exempt), schools and childcare were closed for a short while and when it opened there were smaller groups...

At that point in time, there were few covid deaths in Norway so this is in no way surprising. Since we also have general good heart health, deaths from sequelae like coronary disease would also be low.

I dislike having the Norwegian well renowned medical records used in this way to dismiss illness. The author linked to this preprint in the twitter thread Kalliope posted: Post-covid medical complaints following infection with SARS-CoV-2 Omicron vs Delta variants I am currently functioning at...

Same in Norway. Although I'm not sure how many are actually planning to go to Australia or other places. there have been some opinion pieces by healthcare personell where they tell about ads they get sent by companies, with pictures of sunny beaches and promises of better pay and better...

Not in the news, but a friend of mine told me of another friend they have with ME that "nearly died because instead of getting help in the home they [the muncipality] wanted to have them institutionalized". :(