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  1. Midnattsol

    A new framework for developing and evaluating complex interventions: update of Medical Research Council guidance, 2021, Skivington et al

    Summary points Complex intervention research can take an efficacy, effectiveness, theory based, and/or systems perspective, the choice of which is based on what is known already and what further evidence would add most to knowledge Complex intervention research goes beyond asking whether an...
  2. Midnattsol

    Issues to consider in dietary intervention studies in ME/CFS

    Great points @Ravn. I just want to expand a bit on the nutrition intervention and pacing part :) I think certain types of nutrition interventions can, if not be blinded at least be made obscure, even if they are whole diets. As long as there is a control group that gets a similar diet. Say if I...
  3. Midnattsol

    BPS attempts at psychologizing Long Covid

    No. But that they write "If you are unsecure, talk to us" it seems to me it is likely the page is supposed to be for participants in something. Also that they use their first names and not their professional titles at the bottom of the first page.
  4. Midnattsol

    BPS attempts at psychologizing Long Covid

    Beat me to it @Kalliope I'm somewhat glad they put the banality on full display, such as this gem:
  5. Midnattsol

    News from Aotearoa/New Zealand and the Pacific Islands

    That would indeed be me, I'd be happy to be connected to the gastroenterologist dietician :)
  6. Midnattsol

    ME conference in Sweden 11-12th Oct 2023, The Hidden Disease

    I hope Kielland and the rest of the team make more appearances with the Tjenesten ad MEg work, preferably also in Norwegian media :whistle:
  7. Midnattsol

    Long Covid in the media and social media 2023

    That's the one, thanks Kalliope :) The NAV statistics came out 1. June, so they took their time to write an article about it. The March statistics were disseminated a lot quicker. And as always, I'm happy by the lack of public health officials saying long term effects from covid is just anxiety...
  8. Midnattsol

    Long Covid in the media and social media 2023

    I wish I could find it again (NRK's search bar is terrible), I'm pretty sure it was data pulled from our own national registries. Sick leaves are on record levels since swine flu, and one of the more likely diagnoses long covid patients could end up getting ("tired") is partly behind the...
  9. Midnattsol

    Long Covid in the media and social media 2023

    Can't find the article again, but our national news wrote that people on sick leave from covid had a sick leave four time as long as others.
  10. Midnattsol

    Acquiring a new understanding of illness and agency: a narrative study of recovering from chronic fatigue syndrome 2023 Bakken, Strand et al

    There is this one about the FOI, not sure if it's the one you've seen though: Sorry, not up for translating right now :)
  11. Midnattsol

    Norwegian journal for journalists covers the ME debate

    Thank you for putting together this thread, Kalliope :)
  12. Midnattsol

    Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

    I'm a bit annoyed that the title on the case of the journalist that complains to Dagbladet is not clear it was how they discredited him and his work on ME. He wrote about a patient who had cancer and ME who explained how different the health system treated her when she got the cancer diagnosis...
  13. Midnattsol

    Long Covid in the media and social media 2023

    Some happy news. A local politician I mentioned in this thread previously, who had to quit his job due to long covid and has been open about in in the media, have become well enough to start working a bit again. He got ill in 2020 if I remember correctly :)
  14. Midnattsol

    News from Scandinavia

    Some discussion on Twitter (the news site have not shared this article on their own Twitter page, I'm speculating but might be because in the article it says how much ME pieces create "twitter storms"?) Still, there has been discussions on twitter: Edit: The story is of course liked and...
  15. Midnattsol

    News from Scandinavia

    The editor of Khrono, and the journalist who has written more or less all of their stories on Lightning Process, have been interviewed on harrassment from pwME and the difficulties of writing about ME/CFS research. There is a lot of patient blaming and making themselves be without guilt (they...
  16. Midnattsol

    Long Covid in the media and social media 2023

    A quite good article in Aftenposten about long covid today. A swedish woman who have been ill since the end of 2020. Cognitive impairment. PEM. Talks about her situation, the long covid clinic she is at in Stockholm, and a doctor from the clinic is also interviewed. The Norwegian long covid...
  17. Midnattsol

    Ultra-Processed Food: A Recipe For Ill-Health?

    A large reason for why we need healthy convenience foods. If I didn't have someone who can cook for me when I'm not able to myself my nutrition status would be poor.
  18. Midnattsol

    Cot Death Genetic Link: Kathleen Folbigg: Mother who served 20 years for killing her four babies pardoned

    Having more than one dead sibling, and then becoming ill as a teen, the amount of snide remarks I've heard about my mother being hysterical or overreacting "due to the family history" has been sickening. :banghead:
  19. Midnattsol

    The Norwegian Institute of Public Health announces study to see if masks reduce infection

    It was surgical masks, and you did not have to wear them all the time (that would be too much effort), so for example I could meet people at work with the mask around their neck because to wear it at work was not a requirement. Completely useless, and the idea that this is "real word use case"...
  20. Midnattsol

    Long Covid in the media and social media 2023

    A new "how did we do with regards to the covid 19 pnademic" report has come out here in Norway, and one of the authors have been retweeting the interview with Iwasaki on infection sequelae and have had some comments about the importance of caring for long term ill :) She has been supportive of...
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