Search results

Posts moved from Anomalies in the review process and interpretation of the evidence in the NICE guideline for (CFS & ME), 2023, White et al On the negotiating bit. With lifestyle changes, as I think "getting patient to exercise more" can be described as, there is a method that is encouraged to...

That horse has already bolted and left the stable far, far behind.

One Norwegian comedian that have "only been asking questions" about why pwME are against the recommendations for CBT/GET use his experience with lower back pain and being told it was perpetuated by his thoughts as a starting point: Quote from a TV programs transcribed by @Kalliope in this post...

Loved the letter. Thanks to everyone who worked on it :thumbup:

As Kalliope said, it was about the belief they had covid. Framing it as hypochondriac people who read about covid in the news and got scared, believing they had it.

:banghead::banghead::banghead:

Would be nice if people would take such things into account when listening to certain researchers with an interest in lightning process ;)

While in Norway we have yet another article that things like "it pays too little to go back to work" are perpetuating factors behind long covid, fibromyalgia, chronic pain and similar :banghead:

Same for me, just with migraines not asthma. I was not making up that excrutiating pain that made me unable to do things I enjoyed. That my migraines would typically last for the duration of a school day made many adults in my life believe I was malingering to get out of school. Typically enough...

I did not have fever or anything like that that I can remember, so it was either asymptomatic or that the infection was long before I started to notice I would feel terrible when doing stuff. It was just assumed I, especially as a teen, likely had had a recent EBV infection.

This is making me miss cell biology now that I'm working with questionnaires instead of biological data. Though my work now is much more ME friendly than being in the lab :laugh:

I will watch it later :) An example of commenting without having looked at the content :angelic: I look forward to having the asymptomatic infection can cause long term consequences as a recognized fact, at least in the media over here the "experts" cited often only focus on those hospitalised...

So those of us without a clear infectious onset may have had an asymptomatic infection, or have seemingly recovered from an infection but accumulated damage over time causing us to gradually decline in health over months/years..?

I don't know about the rest of Scandinavia, but there are many people with overlapping opinions on the causes of ME and gender dysphoria here, especially in kids. It's all anxiety and depression and should be treated with CBT.

Yet another not bad article from Norway, although the focus this time is there will be a Norwegian paxlovid trial. No mention of ME, and I think if the head of the GP association interviewed gave some thought to this she'd realise there IS research on the patients that keep going to see their...

Since they seem assured it is going to work and be generalisable to other conditions, would it matter what condition they got funding for originally? :grumpy: And more than likely something like this is already in place.

At least we are starting to see this type of studies now, I get so sad when I think about all the research that could have been done from the start of this pandemic, giving us better knowledge, and instead... gah. More cbt anyone? It could also be due to different symptoms? For my line of work...

With this model, easy to adapt should you need to apply for funding for another disease instead :whistle:

I'm pretty sure both Wyller and Flottorp also have said it will do no harm to exercise and that there is nothing wrong with patients.

Due to the language used here, such as "logic model" and "iterative" I assume the intervention is based on this type of framework that we have a thread on here: A new framework for developing and evaluating complex interventions: update of Medical Research Council guidance, 2021, Skivington et...