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  1. Midnattsol

    Measuring dietary intake

    That's an important point. I've had patients that have filled out food records who say knowing that they are supposed to write down everything they eat makes them eat differently so it is easier to write down. Also obviously there are other reasons for these records not working out.
  2. Midnattsol

    Measuring dietary intake

    I've been thinking about how best to survey dietary intake in a population with cognitive impairment and/or low cognitive stamina. Food Frequency Questionnaire Typically for a survey, one could use a food frequency questionnaire that consists of a finite list of foods and beverages with...
  3. Midnattsol

    Norway - 2 comedy podcasters cause controversy by misrepresenting ME/CFS, October 2022

    Opinion piece written by an ME patient in the newspaper Aftenposten Norwegian: Nei, du har ikke såret følelsene mine, Harald Eia Google translate: No, you haven't hurt my feelings, Harald Eia
  4. Midnattsol

    News from Scandinavia

    Posts about the recent podcast episode by the comedians Eia and Sagen where pwME were made fun of, and the following backlash, have been moved to a new thread: Norway - 2 comedy podcasters cause controversy by misrepresenting ME/CFS, October 2022
  5. Midnattsol

    Norway - 2 comedy podcasters cause controversy by misrepresenting ME/CFS, October 2022

    Split from the "News from Scandinavia" thread pwME were made fun of in a recent podcast by two well known media profiles in Norway (who have ties to Vogt and Kennair, both proponents of the Lightning Process study), among other things comparing talking an ME patient advocate to talking to ISIS...
  6. Midnattsol

    ‘The Lightning Process’ and chronic fatigue syndrome/myalgic encephalomyelitis, 2022, Vallings

    "a group Scandinavian psychologists"? Wyller and Flottorp are not psychologists.
  7. Midnattsol

    Independent advisory group for the full update of the Cochrane review on exercise therapy and ME/CFS (2020), led by Hilda Bastian

    Hilda has written a review on what happens when reviews are not updated and becomes "zombie reviews": Blog: What’s Happening When Living Systematic Reviews…Stop? by Hilda Bastian
  8. Midnattsol

    The GoodHope Exercise and Rehabilitation (GEAR) Program for People With EDS and Generalized Hypermobility Spectrum Disorders 2022 Mittal et al

    I first thought the Norwegian exercise/rehab clinic by the same name (only in Norwegian) had used an English translation to create the "GEAR" acronym...
  9. Midnattsol

    Europe: European Federation of Neurological Associations (EFNA)

    A post on the results of EFNA's survey on "Assessing diagnosis and care pathways of people living with neurological disorders in Europe" has been moved to the survey thread here: Survey: EFNA: Assessing diagnosis and care pathways of people living with neurological disorders in Europe, closes...
  10. Midnattsol

    UK NICE 2021 ME/CFS Guideline, published 29th October - post-publication discussion

    A post has been moved to a new thread Webinar Oct 13: Current evidence on diagnosis and management of ME/CFS according to NICE and EUROMENE: Are all guidelines the same? Luis Nacul
  11. Midnattsol

    Norway: ME Forening (ME Association)

    A quick translation of the Norwegian text: Nacul has long clinical experience with ME, and has been a researcher for a long time. He has many publications to his name. He was a member of the committee behind the new NICE guidelines, and has been associated with the British ME biobank and is a...
  12. Midnattsol

    Primary Exertion Headaches

    As a kid exercise was a trigger for my migraines that could last up to three days. I have wondered sometimes if it was the first signs of my ME, but I outgrew it and headaches are not a common PEM symptom for me (I can get pulsating pain around the eyes at times I've overexerted myself, but it...
  13. Midnattsol

    News from Germany

    Posts about the heart failure drug vericiguat has been moved to a new thread: Vericiguat [drug for heart failure mentioned by Prof Schiebenbogen]
  14. Midnattsol

    "The responsibility scares me": Exploring the experiences of caregivers to the most severly ill ME-patients

    I read it like Trish does, it makes sense to me from how it would be said in Norwegian.
  15. Midnattsol

    In Schizophrenia, Chronic Fatigue Syndrome- and Fibromyalgia-Like Symptoms are Driven by Breakdown of the Paracellular Pathway..., 2022, Maes et al

    Sure that could happen, but there are a lot of environmental factors that can influence these proteins and how they behave. Potential detriemental effects from diet, drugs, infection, bloodflow to the gut etc can be present even if the genes are fine.
  16. Midnattsol

    Short-chain fatty acids are key mediators of the favorable effects of the Mediterranean diet on intestinal barrier integrity, 2022, Seethaler et al

    The mediterranean diet is typically considered "high fibre", but there are >30 indexes to measure adherence to this diet.. For example some use a threshold value for the amount of fibre or vegetables to be included in a diet for a participant to be seen as "adhering" to the diet, others use...
  17. Midnattsol

    Suppression of TMAO with DMB mitigates vascular dysfunction, exercise intolerance, and frailty associated with a Western-style diet, 2022, Brunt et al

    But fish intake also induces TMAO, and high fish intake is generally associated with health benefits.
  18. Midnattsol

    PEM discussion thread - post-exertional malaise

    This sounds like my experience too.
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