That's an important point. I've had patients that have filled out food records who say knowing that they are supposed to write down everything they eat makes them eat differently so it is easier to write down. Also obviously there are other reasons for these records not working out.
I've been thinking about how best to survey dietary intake in a population with cognitive impairment and/or low cognitive stamina.
Food Frequency Questionnaire
Typically for a survey, one could use a food frequency questionnaire that consists of a finite list of foods and beverages with...
Opinion piece written by an ME patient in the newspaper Aftenposten
Norwegian: Nei, du har ikke såret følelsene mine, Harald Eia
Google translate: No, you haven't hurt my feelings, Harald Eia
Posts about the recent podcast episode by the comedians Eia and Sagen where pwME were made fun of, and the following backlash, have been moved to a new thread:
Norway - 2 comedy podcasters cause controversy by misrepresenting ME/CFS, October 2022
Split from the "News from Scandinavia" thread
pwME were made fun of in a recent podcast by two well known media profiles in Norway (who have ties to Vogt and Kennair, both proponents of the Lightning Process study), among other things comparing talking an ME patient advocate to talking to ISIS...
Hilda has written a review on what happens when reviews are not updated and becomes "zombie reviews":
Blog: What’s Happening When Living Systematic Reviews…Stop? by Hilda Bastian
I first thought the Norwegian exercise/rehab clinic by the same name (only in Norwegian) had used an English translation to create the "GEAR" acronym...
A post on the results of EFNA's survey on "Assessing diagnosis and care pathways of people living with neurological disorders in Europe" has been moved to the survey thread here:
Survey: EFNA: Assessing diagnosis and care pathways of people living with neurological disorders in Europe, closes...
A post has been moved to a new thread
Webinar Oct 13: Current evidence on diagnosis and management of ME/CFS according to NICE and EUROMENE: Are all guidelines the same? Luis Nacul
A quick translation of the Norwegian text:
Nacul has long clinical experience with ME, and has been a researcher for a long time. He has many publications to his name. He was a member of the committee behind the new NICE guidelines, and has been associated with the British ME biobank and is a...
As a kid exercise was a trigger for my migraines that could last up to three days. I have wondered sometimes if it was the first signs of my ME, but I outgrew it and headaches are not a common PEM symptom for me (I can get pulsating pain around the eyes at times I've overexerted myself, but it...
Sure that could happen, but there are a lot of environmental factors that can influence these proteins and how they behave. Potential detriemental effects from diet, drugs, infection, bloodflow to the gut etc can be present even if the genes are fine.
The mediterranean diet is typically considered "high fibre", but there are >30 indexes to measure adherence to this diet.. For example some use a threshold value for the amount of fibre or vegetables to be included in a diet for a participant to be seen as "adhering" to the diet, others use...
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