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Can only hope it gives FaFo/Sintef and the Tjenesten og MEg even more evidence of how anyone who speaks up for us are met. That is has been published in "Kort sagt" ("short mention") hopefully also means fewer people will read the drivvel, at least online.

That is literally how some GET is described when patients say they can't do a workout. Increments that are impossible in day to day life.

I must admit I did not expect that. Sigh.

The Norwegian term was "uverifisert", which has the same meaning as in English. Something that has not been verified, in this case the stories on Recovery Norway's pages.

When I held lectures for newly diagnosed celiacs, part of it included talking about what happens when someone is exposed to gluten by accident. Some don't feel much, others get increased symptom burden for months... though I'm not sure about the "don't feel much" patients, I wonder if they have...

I think it is more likely they got money from the DAM foundation (previously "Extra Foundation", or "Stiftelsen DAM/Ekstra" in Norwegian, https://dam.no/). I've never heard of that other organisation and website you've found. Stiftelsen DAM gives out money for many different projects, and have...

This is an old thread, but I just read that this study is part of a phd and the disputas has been postponed due to illness by the candidate which explain why the study was published so long after it was carried out. The original timeframe was 2012-2015. Some short info on this page, if one...

So now they want to use the word "unethical"? And point fingers at someone else for using big words for a preliminary study with no control group? :mad:

For clarification, this is a comment on the Morgenbladet interview with Kielland I've only read some excerpts, but Flottorp is critical of the Tjenesten and MEg researchers for being to closely allied with the Norwegian ME Association and for discussing unpublished research. The same Flottorp...

They really do work hard to find something to use to dismiss whenever something is written about pwME not from the BPS view about us. I wonder what the Tjenesten and MEg researchers think about how their preliminary findings have been received..

Homecysteine is non specific. It increases when there is deficiency in either vitamin B12 or folate, but can also stay in the normal range if one is sufficient in only one of the nutrients (so that a sufficiency in folate could mask a B12 deficiency, or the other way around, if one only looks at...

I read the post about leaky gut and when the author went on to talk about culture-bound syndromes and apparently sees those as real compared to leaky gut and gluten sensitivity I'm not inclined to take the text written at the blog at face value. At least there is a heavy bias towards psych...

I'm not familiar with fatigue following B12 supplementation. I don't think I would have asked a GP or dietitian about MTHFR, you're likely to either be preceived as someone believing in rubbish or be told a lot of rubbish. What type of B12 did you take following Rich van Konyenberg protocol...

I hardly ever use the name of whoever I see beyond introductions, and my experience in Norway is that first name is what is common for said introductions. Sometimes title, but that would be to explain who the person is, not an honorific. I could say "Hi, I'm midnattsol and I am your dietitian"...

Norwegian: Fakta og myter om ME Google Translate: Facts and myths about ME It's the old arguments about how ME can be cured with cognitive therapy, that there's no scientific basis for harm from cognitive or graded exercise therapy and that IOM and NICE are not research do not represent...

Anne Kielland from "Tjenesten og MEg" that has looked at how the Norwegian health service meet ME patients has among other things said that what surprised her the most was that they found no one when collecting their data who had been helped by the rehabilitation centers pwME are sent to. And...

When they've used the phrase previously it has been as a term used in sociology. In Norweigian the word "symbolic" would be the same as in English. Kielland have referred to the work by Xavier Gimeno Torrent that also uses the term, discussed here: The circuit of symbolic violence in chronic...

Thanks @shak8 :)

That is a problem, but with the packaging it is possible to get a semi-reliant estimate from looking at recipes for a similar meal and compare the recipes nutrient content with the nutrient content on the packaging. Food composition datatables are also increasingly adding ready meals, so...

Yeah, the only reason I can do a recall is that I eat more or less the same throughout the week, so there are very few things to remember. I'd like to include a question about foods that are avoided (or foods that have previously been excluded from the diet for some reason) and/or cause some...