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  1. Midnattsol

    Independent advisory group for the full update of the Cochrane review on exercise therapy and ME/CFS (2020), led by Hilda Bastian

    They were sent a few weeks ago, but are about what FHI/NIPH has had to deal with when it comes to "the ME debate", and as I read it presented as a win. That the review is still up has been used to argue that it is not bad (for then it would have been withdrawn :confused: ), I have not seen IAG...
  2. Midnattsol

    Independent advisory group for the full update of the Cochrane review on exercise therapy and ME/CFS (2020), led by Hilda Bastian

    forgot to tag @Caroline Struthers (new post since tag won't work in an edit) Please share :) The deputy chair has also commented on how Flottorp has been in touch with our institute for alternative health (NAFKAM) and commanded them to pull their warning about Lightning Process so might be a...
  3. Midnattsol

    Independent advisory group for the full update of the Cochrane review on exercise therapy and ME/CFS (2020), led by Hilda Bastian

    It's from an email sent to a member of the new National Ethics Committee before they got the LP study on their table. Originally from here: I've translated it here: https://www.s4me.info/threads/lightning-process-study-in-norway-given-ethics-approval-february-2022.14876/page-45#post-449446 a...
  4. Midnattsol

    Independent advisory group for the full update of the Cochrane review on exercise therapy and ME/CFS (2020), led by Hilda Bastian

    I think what Flottorp is referring to are the emails between the old editor at Cochrane where he wanted to withdraw the exercise review and the Norwegian National Institute of Public Health authors. Not the IAG.
  5. Midnattsol

    Norway - 2 comedy podcasters cause controversy by misrepresenting ME/CFS, October 2022

    One of the comedians have made an official complaint to the press's ethical committee about a journalist from TV2 that wrote about ME without disclosing he had been part of a fundraising for ME research. Didn't get through the article, but the comedian claims it has nothing to do with ME, but...
  6. Midnattsol

    Tissue specific signature of HHV-6 infection in ME/CFS, 2022, Prusty et al

    My class benefitted from having a professor that has been targeted by BPS proponents to lecture us. Talked about working with patients, and how difficult that was because being on the patient's side when it comes to ME meant one could be attacked as a professional from colleagues. Was very clear...
  7. Midnattsol

    Advice on mask-wearing to protect against Covid-19

    I wonder what will happen in Norway now, our deputy health minister has said people should consider masking, but just like other places "consider" and "recommend" doesn't cut it. I wear a mask and have placed an air purifier in my office. It bugs me that I work in a building where two floors...
  8. Midnattsol

    Lightning Process study in Norway - Given Ethics Approval February 2022

    Professor in psychology at UiO (same university as Wyller for those not familiar). Translation: "Has a controversial head of research at FHI, who have been very involved in the ME-debate, really tried to influence the independent ethical review of a disputed ME-study of her good colleagues...
  9. Midnattsol

    Information card, or similar?

    Same. If I can avoid saying ME it is that my muscles easily fatigue and/or gets weak.
  10. Midnattsol

    Lightning Process study in Norway - Given Ethics Approval February 2022

    I'm happy Befring answered this. And I wonder what did Jo and Camilla talk about the 15th november so that he sent this email the 16th.
  11. Midnattsol

    Lightning Process study in Norway - Given Ethics Approval February 2022

    Sorry for the double post. The claim that harm a long time after LP is unlikely, but effect shortly after LP indicate it is curative does not sit well with me when one has to say after the course one is healthy or it doesn't work. Well obviously a lot of other grievous things, but this one...
  12. Midnattsol

    Lightning Process study in Norway - Given Ethics Approval February 2022

    "Not read in detail". Siri Forsmo from NEM that defended the study on Dax18 made it sound like she herself hadn't read it and I would be more surprised if she hadn't (as a member of NEM) than Flottorp. They refuse to talk about the issues anyway.
  13. Midnattsol

    Lightning Process study in Norway - Given Ethics Approval February 2022

    I assumed the figure was familiar on this forum so I didn't bother to go looking for a higher quality version. :)
  14. Midnattsol

    Lightning Process study in Norway - Given Ethics Approval February 2022

    Reply from current deputy chair(wo)man in NEM Translation: What is striking is how a researcher in FHI is lobbying a member of NEM directly during the decision process. This should occur through open communication. The characteristics of previous NEM decisions and "ME activism" is tendentious...
  15. Midnattsol

    Lightning Process study in Norway - Given Ethics Approval February 2022

    It doesn't say. Though I don't see the point in hacking or leaking when it would be available as a request of correspondence on the matter to NEM (if I remember our laws right).
  16. Midnattsol

    Lightning Process study in Norway - Given Ethics Approval February 2022

    SMS and email correspondence from Signe Flottorp to a member of the ethics committee has been posted on twitter. It seems to be from after the decision in NEM was made. It is after the decision by the regional committee but before the national ethics committee decision which makes more sense...
  17. Midnattsol

    Information card, or similar?

    In my experience I can give the best explanation possible and get told they understand, but time and time again one has to collapse in front of someone for they to actually believe. :banghead:
  18. Midnattsol

    News from Scandinavia

    Not ME but MS, I found the focus on disease mechanism quite nice... Google translate: International researchers propose a new definition of the disease MS
  19. Midnattsol

    Vocal biomarker predicts fatigue in people with COVID-19: results from the prospective Predi-COVID cohort study 2022 Elbéji et al

    Well, changes in my voiceis a sign I'm starting to struggle, though I can crash also without this happening
  20. Midnattsol

    Neurologic sequalae of COVID-19 are determined by immunologic imprinting from previous Coronaviruses, 2022, Marianna Spatola et al

    As far as I know I didn't have more or worse colds than my three sisters. I did have some other recurring infections that required antibiotics though.
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