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Thank you. I think it will be fine with the text I can read of the screen :)

I can have a go at transcribing today :)

Posts in this thread on "The Comeback study" have been moved to the study's own thread: The Comeback Study: fecal microbiota transplant for ME/CFS

Some posts have been moved into this thread from the "News from Scandinavia" thread.

Update from the team today on their facebook page https://www.facebook.com/thecomebackstudy "Hi, An update from us: We have now ended the clinical part of the study, and going forward the focus will be on analysis and interpretation of the data. We unfortunately don't have an exact date for...

Definitely. My digestion is usually fine if not in PEM (some foods I don't eat anyway, but I don't have to plan as much as when in PEM and no need for fortification). There are also changes in athletes digestion after heavy exertion.

There are a number of standardised measurements of risk of undernutrition, MUST has already been mentioned in the thread. Others are NRS2002 and MST. There are also general guidelines on BMI and rate of weight loss for when someone is undernourished or not (f.ex. "BMI <18.5 or lost 5% of weight...

If I write up a feeding plan, liquids are in it, and if necessary I would be calculating electrolytes (heck, even physical activity is part of "dietary guidelines" in many countries). To me food/dietary intolerance would not necessarily mean anything specific. In Norway we have "skånekost/easy...

Some foods are harder to digest than others, so could very well give a more adverse reaction if the problem is related to energy use in the gut and motility. As a non-native English speaker I may be missing nuances here, but "nutritional intake" intead of "food" or "dietary" doesn't make much...

This assumes people get erythriol from products they buy, and that such products are "low carb". With a low carb ice cream, not being too worried about fat, the level of erythriol might not be so high as in other products. Also, erythriol are used by consumers in their own recipes to make them...

And that if you have a high concentration of erythriol, that means you also eat a lot of whatever the erythriol is in that could be influencing an effect. In the case of erythriol, likely something processed, with low nutrient quality. A very frustrating problem in nutrition research when say...

Related to the attitude "they will eat when they are hungry", it could perhaps also be useful to look at advice given when children with autism or ADHD are not eating enough. This is an attitude that has to be combatted so the child gets adequate help.

For those interested, guidelines used by dietitians (and others who want/need to understand nutritional needs of patients): Guidelines used in Europe can be found at ESPEN: https://www.espen.org/guidelines-home/espen-guidelines American guidelines at ASPEN: https://www.nutritioncare.org/ As...

Not being able to go to the shop is something that put patients in the "risk of malnutrition" category, as is being unable to prepare food. And it's also the level of risk and the length of time this risk is assumed to be present that is used to decide whether for example tube feeding should be...

There are already guidelines for when tube feeding should and shouldn't be used, and they are not specific for diagnoses. Rather they are in place to avoid that anyone is malnourished. For some diagnoses tube feeding can be contraindicated at various times if not all the time, but then we are...

A bit too tired to join in on the discussion, but: I want to point out that ME being treated worse than other illnesses re nutrition is not necessarily true. I don't think Norway stand out in a negative way when it comes to nutrition, but as previously mentioned: Nutrition screening is not...

Yes, this is the attitude from doctors (and also nurses and others) I was thinking of. Pre-ME diagnosis (ie. mid-to-late teens and had started to have ME symptoms) I struggled with nausea and low appetite and had a low enough energy intake to lose my period, by BMI measurements I would be...

I don't think this is an ME specific issue. Undernutrition is underecognized and often not screened for, and your general healthcare worker is not able to recognize it (yes, even people that don't look like skin and bones can suffer from undernutrition). It is seen in many patient groups, not...

For nutrition support, this is true for more than ME. We have few studies, and a lot of practice is instead based on "best evidence". For a dietitian, knowing a patient has an ME diagnosis could lead thoughts along the need for a careful start/maintenance of enteral and/or parenteral nutrition...

I'm not familiar with the UK system, but "psychosomatic/physical" attribution definitely plays into it if a patient get nutrition support with the reasoning that one does not want to "reward" the mistaken belief the patient can't eat. So instead look for reasons why a patient does not eat, or...