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  1. Suffolkres

    Persistent fatigue induced by interferon-alpha: A novel, inflammation-based, proxy model of Chronic Fatigue Syndrome, 2018, Pariante et al

    If this is a repeat, I apologise! From LocalME; https://steamtraen.blogspot.com/2018/12/have-scientists-found-explanation-for.html "Thanks for posting that link V. Prof Pariante did not make clear that this study was not about ME, but Jon Peters was very good and he pointed this out. He was...
  2. Suffolkres

    Persistent fatigue induced by interferon-alpha: A novel, inflammation-based, proxy model of Chronic Fatigue Syndrome, 2018, Pariante et al

    "......They suggest that some people who are depressed may actually be suffering from an over-heated immune system........" I wonder what this 201 article brings to this thread. i have the magasine somewhere.... https://www.newscientist.com/article/mg17022954-600-a-mind-under-siege/ "16 June...
  3. Suffolkres

    NICE guidelines - Resources on severe and very severe ME.

    I was involved with the APPG initiative which followed the Catherine Hale Report on Barriers to Care for "PWME survey" a few years back on social care for pwme. APPG folded but we did get Carol Monhagan etc out of it!! I submitted a case study to the inquiry which I would be happy to share. Tony...
  4. Suffolkres

    NICE guidelines - Evidence of harm from Graded Exercise therapy

    David T has collated the adverse effects and harm of the NICE GET and CBT approach - and requirement placed on "clients" involved with Insurance Company PHI and other OH claims with employers such as ill health retirement.(Optimum GET and CBT at that). ( SWiss Re PW et al) Some of this was due...
  5. Suffolkres

    ME/CFS services in the United Kingdom

    If I were you,........ I'd phone a friend, "DR Mike B....? ! " Liverpool The Liverpool CFS/ME Therapy Service, Ward 10, Alexandra Wing, Broadgreen Hospital L14 3LB, part of the Royal Liverpool and Broadgreen University Hospitals Trust. Tel: 0151 282 6185. Manager: Colette Foster Enquiries and...
  6. Suffolkres

    Open University - Camelford Case Study

    Subject: Multiple Chemical Sensitivity International (MCS International) - London 2003 London 2003 Misdiagnosed Illnesses - what you can do medically and legally. Despite 300 delegates on day one and 200 on day 2, there was no-one representing any of the official ME charities. Next time it...
  7. Suffolkres

    Open University - Camelford Case Study

    I met Doug a few times in the early 2000's at Green Environmental network and Environmental Law Society events. Sarah Myhill was also there as was Marty Pall. ( 2004?) If he couldn't get justice with his credentials, who can? SW has an awful lot to answer for...
  8. Suffolkres

    The HOME study - Michael Sharpe s CBT for the elderly

    I very much doubt it, as I am sure he's not quite..... 'kosher".......? http://www.ok.org/companies/what-is-kosher/meat-dairy-pareve-setting-boundaries/ Kosher meat must come from an animal that chews its cud (he certainly knows how to do that!) and has split hooves. (Cows, sheep and goats are...
  9. Suffolkres

    ME/CFS services in the United Kingdom

    This chap looks like he might be worth cultivating....! http://www.michaeljscottptsd.com/ " A Failed Mental Health System Mental Health undoubtedly needs to be better resourced but the clamour for equity with physical services masks that ‘the current mental health system is not fit for...
  10. Suffolkres

    ME/CFS services in the United Kingdom

    This looks to be interesting....... http://www.cbtwatch.com/complex-iapt-dumping-secondary-care/ ‘Too Complex for IAPT’ – Dumping on Secondary Care? 12th August 2017 admin IAPT, Resources admin 12th August 2017 at 1:50 pm IAPT don’t have a clue what they are assessing, so how can they...
  11. Suffolkres

    ME/CFS services in the United Kingdom

    Oh how the mighty are fallen.......? "East London Foundation Trust (ELFT) has stopped taking referrals for patients with chronic fatigue syndrome in City and Hackney and will cease running the service from April (2018) this year." "Chronic Fatigue Chronic Fatigue Service The Chronic Fatigue...
  12. Suffolkres

    ME/CFS services in the United Kingdom

    04/03/2018 East London Foundation Trust (ELFT) has stopped taking referrals for patients with chronic fatigue syndrome in City and Hackney and will cease running the service from April this year. City and Hackney clinical commissioning group (CCG) said the mental health trust had decided to...
  13. Suffolkres

    ME/CFS services in the United Kingdom

    Probably a non selected Google......
  14. Suffolkres

    2018: Discussion on the NICE procedure: what to expect next?

    A friend wrote today, "I read this ages ago and can't bear to read it again! But a couple of things which struck me again just from this extract: 1) It's odd (but telling?) that he describes it as 'a prosperous voyage' - you wouldn't have thought that 'bringing wealth and success' or...
  15. Suffolkres

    2018: Discussion on the NICE procedure: what to expect next?

    "The fundamental mechanics of the ship remained water tight and at no time were the ship or its passengers in peril until it safely docked exactly where it was supposed to." Really; no patients in peril or harmed...???
  16. Suffolkres

    2018: Discussion on the NICE procedure: what to expect next?

    The PACE Trial for chronic fatigue syndrome: choppy seas but a prosperous voyage A large clinical trial might be said to resemble an ocean liner, which is leaving Southampton to sail to New York. It is a complicated system. There will be a captain on the bridge and a large crew. They will have...
  17. Suffolkres

    The IAPT Pathway for People with Long-term Physical Health Conditions and MUS. Full implementation guidance.

    This was my belief in 2005 and 2006 regarding NICE, and it was the reason I did not engage with it, ie the NICE process (it was already well covered by good people) I remained a passive observer - It was my view in 2017 that history was repeating itself and that NICE (DoH Government Royal...
  18. Suffolkres

    The IAPT Pathway for People with Long-term Physical Health Conditions and MUS. Full implementation guidance.

    https://ebmh.bmj.com/content/18/4/97.full PDF Perspective App-based psychological interventions: friend or foe? Free Simon Leigh1,2, Steve Flatt3 Author affiliations Lifecode Solutions, Liverpool, UK Liverpool Health Economics, Management School, University of Liverpool...
  19. Suffolkres

    Pulse: "Revealed: How patients referred to mental health services end up back with their GP"

    NICE technical for ME should rule this out on lack of cost effectiveness then.
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