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Thank you for those comments and observations. Keep them coming! I don't see it as negative at all. We need all the advice we can GET, no, get! The problem we are grappling is not the approach in the ME Clinic (diagnosis and therapy service) , but the lack of the tier 2 service which covers...

Jonathan, we need need advice regarding services in Suffolk ( Rheumatology perhaps?) We have encountered a blip in Suffolk. Having some creative thoughts about service provision and a specialist service head. In order to maintain a two tier service- for adults primarily; 1. mild/ moderate...

The CBT is Waveney wishing to cover their backs for mental health deficits. They have inflated the numbers referred to ECCH (not all ME), have increased referral by 50% without providing the necessary for either staff or the service. The numbers in the briefings were inaccurate as the researcher...

We have encountered a blip in Suffolk. Having some creative thoughts about service provision and a specialist service head. In order to maintain a two tier service- for adults primarily; 1. mild/ moderate, diagnosis and management- 2. on going review and moderate to severe patient needs...

I delivered a Case Study to the APPG 'Barriers to Social Care' and gave a lecture to Social Worker Students at University of Suffolk in 2016. I had hoped this would have been useful as 'grey evidence' for NICE! I could post both if anyone was interested? ( case Study and Power point etc) I did...

We have this page and this document to access on our web/blog. http://nandsme.blogspot.com/p/blog-page_23.html Guide to the Care Act 2014 and the implications for providers

Many thanks for casting your eye. It's really helpful and yes, ...."....those documents show how difficult it will be to argue for specialist services to be provided for CFS which do not rely on CBT and risk end up employing people who do more harm than good." THIS is what NICE must address...

Our ongoing battle with the new 'lead" ME and CFS CCG.......... Today I discovered two important reports (described as Evidence briefings) had been delivered on our commissioned regional services and the influence of the NICE Guidance ......and the CCG had not alerted or informed us. It...

CONSORT stands for Consolidated Standards of Reporting Trials and encompasses various initiatives developed by the CONSORT Group to alleviate the problems arising from inadequate reporting of randomized controlled trials. http://www.consort-statement.org/ This should also be fed into the...

This might be worth following up? Home Welcome to the website of CEP, the Council for Evidence-based Psychiatry. CEP exists to communicate evidence of the potentially harmful effects of psychiatric drugs to the people and institutions in the UK that can make a difference. The scientific record...

I can see we are speaking from the same hymn sheet. It was on Bengie's site, Sense About Science, that we found the "culprit' 'Jonas" bragging about taking Dr Sarah Myhill down. Well he got his come upance with the combined efforts of Patient /carers and clinicians countering and dealing with...

Ben is a bit of a 'chameleon' in my view. Probably some of this rubbed off from his 'early life and experiences at Kings, ......the home of the master chameleon(s)! He did a cracking lecture at the Adverse Reactions from Medication Conference several years ago...

Merged thread https://www.sciencedaily.com/releases/2019/02/190211164002.htm?fbclid=IwAR02EHPLvEiTi5KbL4XHDH-OcMjMJ-El1PxEHzJlkvUGG9NfIph0678hmlI Source: University of Manchester Summary: Scientists have discovered a critical part of the body's immune system with potentially major implications...

I have now listened to the full 40 minute interview between Richard Holt and Nick D. Nick D was honest and even handed about his situation; I even made some notes and observations, but it's clear Mr Holt is not a good listener. If he had really listen and used his brain, he wouldn't have...

Ah, but I don't have ME ( am a carer for 2 that do have it- moderate/severe - son over 20 years and husband nearer 40 years) I am blessed with lots of energy so i might make a tentative contact.....

Feel free to use the contacts below Richard Holt https://healthybeast.podbean.com/ (Lucky Old you!!!!) Tired of chronic fatigue syndrome February 1, 2019 Writer Nick Duerden had a very active life before he was hit by an illness that left him virtually unable to leave the house. Luckily he...

Good to see Jerome back. Could we interest him once gain on our ME issue with HRA, BMJ and Lancet? "Shockingly, because the Lancet is a respected medical journal, it’s nonsense. ...... Jerome Burne is the editor of HealthInsightUK. He is an award-winning journalist who has been specialising...

http://healthinsightuk.org/2019/02/11/latest-statin-scam-mis-selling-them-to-pensioners/ "A recent article in the Lancet, widely covered in the press, claimed that if everyone in the UK aged 75+ took statins, deaths from heart disease would plummet and 8,000 lives would be saved. Shockingly...

I used Google translate to send letter to my Polish friend, She is still laughing at it!