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I think this could make all the difference to getting research of the quality needed. I took part in the final PSP workshops and they had plenty of patient applicants for those so I don’t think there would be difficulties getting people willing to take part in patient involvement. I like the...

So is this evidence of evolution of Chew Graham approach or trying to preserve as much MUS thinking as can be got away with?

That’s why it’s good to see considered responses like @Lucibee s draft. It’s very far from the social media knee jerk response that they might prefer.

Difficult at my age/severity(milder end of moderate)/family history to come to a judgment. On the positive side I might have 20 more years in me. I have some hope because of my house situation calming down with no further work that I can cut down significantly on having to over exert. And may...

@PeterW

Good to see he made it there think the fight will continue, but we’re going in the right direction now

Not an ideal day to try to get MPs to focus on something other than party politics. I hope Javid will still be able to speak at the APPG this pm.

The publishers blurb includes the usual supportive quotes from famous people Paraphrasing Justin Webb from the BBC seems to think this is how to talk about science Spiegelhalter says there are some compelling stories Al Khallili says something…. perhaps they should all be questioned...

Excellent review on Amazon @Trish

How can she be a victim of disinformation she is supposed to be a media expert yet has swallowed one perspective and failed to fully research the whole picture.

It would be easier to read with more white space the text is quite closely packed

I’m old enough to have had the smallpox vax as a child so have less to be concerned about for a change.

Great work I hope the connection works out well :thumbup:

Me too

he’s not the only person to have been taken in by BPS crew that’s perhaps understandable if someone works on the basis that their peers are behaving with integrity etc - all the standards of public life. Also perhaps once the situation became clear he didn’t understand how much effort it would...

Possible way round that a group of people to collaborate and each submit a letter covering one point

@Joan Crawford

At least 10 years in my case

Let’s hope they don’t ask CDC advice on who is an expert on ME/CFS

Yeah and she’s clearly not bothered about lumping everyone together. People with ME in general aren’t worth her eminence engaging with.