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The article is paywalled. According to the references, there seems to be a couple of mentions of ME/CFS.

Yes, it's such a pity this field is full of vague words. "Fatigue" "pain" "(post exertional) malaise" etc. Pacing is not a good word either. I guess the patients in the PACE trial kind of paced up and down the hallway in the 6 minutes walking test, without pacing at all :confused:

I wonder if Dr. Griffin might belive that pacing is the treatment protocol from the PACE trial?

In the latest This Week in Virology podcast with Clinical update with Dr. Daniel Griffin the paper "High incidence of autonomic dysfunction and postural orthostatic tachycardia syndrome in patients with long COVID" is discussed. Both Professor Racaniello and Dr. Griffin mention being in...

The German Minister of Health on Twitter (auto translated): Next Wednesday I will present ⁦@C_Scheibenbogen our initiative #LongCovid and #ME /CFS. Useful therapy concepts are slowly being developed. Unfortunately, research into truly breakthrough drugs is underfunded google translation of the...

Is Long Covid starting to make societal changes? I've been wondering if a huge increase of chronic illness could help with better adaptations for workers with disabilities, that something good could come out of it as a more inclusive work life. But it's no good if people are forced into...

Agree. Do you know if this is used in their Long Covid trial?

This web site has been doing the rounds on Twitter today. It's from Mind Body Lab with among other LP researcher and Professor in psychology Silje Reme. It provides advice on faster recovery with different CBT methods and LP inspired visualisations etc. It's in Norwegian but there's google...

BMJ Retract or be damned: a dangerous moment for science and the public By editor in chief Kamran Abbasi Quote: Two troubling themes emerge from John Rasko and Carl Power’s examination of Macchiarini’s legacy (doi:10.1136/bmj.p1367).3 First is the apparent unwillingness of institutions to admit...

I watched the talk by Dr. Dag Storla who is the doctor at Røysumtunet, an institution with an offer for severe ME patients in Norway. I've heard about people making improvements there, and was interested in what kind of treatment programme they have. Dr. Storla talked about 4 steps in their...

There is also one taking place in Sweden with 400 participants titled imPROving Quality of Life In the Long COVID Patient (PROLIFIC)

Medpage Today Stanford Study of Paxlovid for Long COVID Stopped Early Quote: Two sources familiar with the STOP-PASC study told MedPage Today that trial enrollment had been halted. One was told by a study coordinator that a preliminary review found "inconclusive evidence" for the primary...

They have done that before, so chances are good they'll do it again :-) Here is the YouTube channel to the Swedish patient organisation RME with talks from previous conferences: https://www.youtube.com/@rmesverige1475

The Swedish patient organisation RME has organised a big ME conference every autumn for several years in a row. This year they are organising a new conference together with the patient organisations in Norway, Finland and Denmark. The conference will take place in Stockholm and in Göteborg. It...

Thread from Dr. Binita Kane saying history of treatment of children with ME is repeating itself with Long Covid:

Was it this article? https://www.nrk.no/rogaland/sterk-sammenheng-mellom-korona-og-sykefravaer-med-trotthet-og-slapphet_-1.16443369 It's based on a recent press release from NAV which has more details and statistics...

We are slowly getting some news coverage of Long Covid here in Norway. Sick leave due to "tiredness" is up with 26% and there are between 30 000 and 60 000 children with long term school absence. The clinic that offers the treatment from the study, Helse i Hardanger, is presented in the media as...

Yes! That's the one. Here's automatic translation of the Norwegian text in the first image: Is deferred publicity applied for? yes What is the justification for the application for deferred publicity? for the sake of ongoing research work Elaborate on the rationale and state the...

Science education researcher Unni Eikeseth has shared Steinkopf's blog post on Twitter and comments (automatically translated) : ME journalism in Norway is a scandal. Where is the power-critical look from the press? Where are the cases where the media work to protect ME patients from abuse and...

Sure! Have added a link now :-)