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  1. Kalliope

    Rehabilitation for Patients With Persistent Symptoms Post COVID-19

    This is one of two places in Norway that will be treating Long Covid. The other one is Sunnaas which is a well respected place for rehabilitation, but I believe with a BPS approach to ME. It seems their main treatment approach to Long Covid will be rehabilitation in form of exercise.
  2. Kalliope

    Rehabilitation for Patients With Persistent Symptoms Post COVID-19

    Oh, dear. This is at a rehabilitation center in Norway called Helse i Hardanger. It's based on a four-day-intervention program against anxiety. They have expanded their treatment approach to several other diagnoses, and now obviously also to Long Covid. A psychiatrist who is working there says...
  3. Kalliope

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    Article from a Danish new site about medicine and health on Long Covid. It interviews doctors who are working on rehabilitating Long Covid patients. They seem to describe PEM and have realised that classic rehabilitation doesn't work and that they have no real treatment to offer. But they still...
  4. Kalliope

    News from Scandinavia

    The Norwegian ME Association, The National Competence Service for CFS/ME and the Norwegian Institute for Public Health are organising a research conference in Oslo November 22-23. The conference is aimed at researchers, health care personnel and students. Lecturers: Karl Johan Tronstad Marte...
  5. Kalliope

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    The Atlantic has printed an excerpt from Ed Yong's introduction to the coming book The Best American Science and Nature Writing 2021 Ed Yong: What Even Counts as Science Writing Anymore? quotes: The best science writers learn that science is not a procession of facts and breakthroughs, but an...
  6. Kalliope

    News from South Africa

    An informative radio interview about ME, with good, basic information for a general audience. Duration: 15 minutes. 702. The ME CFS Foundation South Africa founder and director Retha Viviers shines the spotlight on myalgic encephalomyelitis. Introduction: This week, East-London based singer...
  7. Kalliope

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    Time Can Breakthrough Infections Lead to Long COVID? For an Unlucky Few, Yes Quote: “Deaths and severe disease and hospitalization are…understandably what we are focused on. But Long COVID is an absolutely debilitating disease,” Iwasaki agrees. “It’s really been ignored to a large extent, and...
  8. Kalliope

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    This is a brilliant, short summary of Ed Yong's reporting on Long Covid and ME, and how research efforts must change in order to meet the patients' needs.
  9. Kalliope

    Sweden - RME news

    Merged thread ME conference October 2022 The Swedish patient organisation RME is hosting their annual ME conference 13th October [2021] from 13.00 - 17.00. The conference is aimed towards health care personell, researchers and decision makers within health care. This year it will be on zoom...
  10. Kalliope

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    The Conversation Social media, activism, trucker caps: the fascinating story behind long COVID by professor Deborah Lupton quote: The outstandingly successful example of long COVID is the latest of a history of patient-led support, information sharing, activism, fund raising and involvement in...
  11. Kalliope

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    Digital Journal Long COVID and the connection with chronic fatigue syndrome by dr. Tim Sandle Quote: Based on evidence from past viral outbreaks, researchers expect that at least 10-12 percent of COVID-19 patients will go on to develop ME/CFS following COVID-19. This tallies with the fact that...
  12. Kalliope

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    The Week The cost of long COVID quotes: Whatever the cause, long COVID mirrors other mysterious, chronic illnesses triggered by viral and bacterial infections. Among them is myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS), cases of which have been linked to outbreaks of SARS...
  13. Kalliope

    BMJ Global Health - Conceptualising Long COVID as an episodic health condition - Darren A Brown, Kelly K O'Brien, 2021

    Conceptualising Long COVID as an episodic health condition Conclusion Long COVID may be conceptualised as an episodic illness, characterised by health-related challenges (or disability) that may be multidimensional, episodic and unpredictable in nature. It is essential to better understand...
  14. Kalliope

    News from Scandinavia

    An article about research into ME from the tabloid newspaper Dagbladet who has a history of grim articles attacking ME patients. I'm not sure why this article is coming now and if this is a hint of how the BPS-group will try to position themselves going forward. The article is paywalled, but...
  15. Kalliope

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    Deepti Gurdasani (from twitter bio: Senior Lecturer @QMUL Epidemiology, statistical genetics, machine learning) has a critical thread about the article and study here: https://threadreaderapp.com/thread/1438780287958257664.html ETA: Corrected link
  16. Kalliope

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    Dr. Charles Shepherd has commented the article on Facebook: - "This is a long and fairly comprehensive review of Long Covid But there's nothing really new and it's very disappointing to see no acknowledgement whatsoever of the important clinical and pathological overlaps between Long Covid and...
  17. Kalliope

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    No mention of ME, but an interesting article. Inews Scientists are only beginning to understand why coronavirus symptoms can linger for months Quotes: Many people suffering from long Covid feel worse than patients with advanced lung cancer, according to the first major study to quantify the...
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