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This was very good. My impression it that this is the first time the journalist is covering ME, and he's really done his homework! ETA: Thank you for warning about the loud music in the start!

Thank you! That helped me find this summary of a talk by dr. Harsha Master from the Royal College of General Practitioners annual conference 2021 with more details of how they work: https://www.rosecottagedoc.co.uk/post/red-flags-in-long-covid

She explains a bit more at 30 minutes into the podcast. I was not able to work out the name she uses for this model, perhaps someone else can. Developed by a dr. Master?

The Science Bit "The problem may well be that some of our treatments are too evidence based" quote: Colleagues on the Science For ME forum drew my attention to this little gem of a passage — removed from the internet just last month, but preserved for posterity by the Wayback Machine — which...

Dr. Amy Small was interviewed in the last episode of the podcast Talking General Practice. The interview begins at 11.45 minutes into the podcast. She talks about her infection with Covid-19 and developing Long Covid. Then of how she improved with dietary changes (like cutting out sugar)...

Another article from Nina E. Steinkopf who tells the story of a parent of a child who underwent LP. The article was first published in July 2021, but has now been translated into English. Treating children with the Lightning Process quote: It was a scary experience for me as a parent. How bad...

Fantastic opinion piece in the Norwegian newspaper Aftenposten by the professors Ola Didrik Saugstad and Rolf Rønning. They start with sharing the news about the NICE guideline, and then provide some history (as Wessely, the psychosomatic approach), present research into ME, how ME patients...

good question. This is a google translation of the argumentation from the LP association from Nina E. Steinkopf's article: The decision was based on the LP association's view on the matter: “LP must be regarded as a teaching activity where stress-regulating and performance-enhancing knowledge...

Nina E. Steinkopf with interesting news from Norway. The Norwegian Directorate of Health and the Consumer Ombudsman defined LP coaches as practitioners of alternative treatment in 2018. This year, LP coaches asked the Norwegian Directorate of Health to review that definition. The Directorate...

From twitter. Sharpe criticises Kunst for getting a thread about lack of evidence behind GET/CBT wrong:

Dr. Phil Hammond has now read the guideline:

Here's an article from 2004 where it states that 100 people still felt fatigued after having contracted the Giardia parasite in the outbreak in Bergen in 2004. Over 20 of them got diagnosed with ME according to same article and the researchers wanted to study ME as part of this. google...

Until the pandemic, this outbreak of Giardia in Bergen, Norway, was said to be the first time researchers knew for sure what had initiated ME, which made this particular patient group very interesting to study. Now it seems the researchers have moved away from "ME" to FM and "chronic fatigue"...

This refers to the NICE guidelines, but as dr. Asad Khan brings in the aspect of Long Covid in his tweets, I figured this was the best thread. Interesting, but not surprising, what he's saying about silent colleagues who have worried about linking ME to Long Covid and the reason why. I hope he's...

This refers to the NICE guidelines, but as dr. Asad Khan brings in the aspect of Long Covid in his tweets, I figured this was the best thread. Interesting, but not surprising, what he's saying about silent colleagues who have worried about linking ME to Long Covid and the reason why. I hope he's...

only vaguely. it will be interesting to see if they'll adjust anything. I'm not holding my breath. When it comes to @Jonathan Edwards 's question, there are two articles so far in Denmark about the NICE guideline. Haven't seen anything yet from Sweden or Denmark. One of the Danish articles is...

The New York Times Another Struggle for Long Covid Patients: Disability Benefits I have a temporary subscription to NYT so the article is open for me, but I don't know whether it is for everyone. If it's not, and you want to read it, just send me a PM and I'll copy/paste it to you. Quote: Long...

I am so sorry to read what St. Olavs hospital put you through, @rainy :broken_heart: I completely understand why you don't trust them to be able to make a proper plan of care for ME patients. I'm worried as well about this. Once again there's been a rather positive initiative from politicians...

I assume that is the standardised plan of care which has been promised for several years to be developed for ME patients. But they've expanded it to be a plan for fatigue-conditions in general, so I fear it will end up with a biopsychosocial approach and be more suited for other conditions than ME.

Moved post That was a really nice podcast. Very interesting to hear about dr. Putrino's work. Here's a transcription of what is said between 26-33 minutes into the podcast (hope I got most of it right): Amy Proal Overall, I can understand how when a clinician first sees a patient like this...