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I didn't know anything about AfME before using this forum. Now (having learnt more about them) it seems clear to me that AfME do not want to be a charity specifically for ME sufferers, that is, for people with ME (including those diagnosed with ME/CFS or CFS) whose symptoms include 'post...

And not burn it!

I followed some of Mike's links in his IAPT section: http://www.cbtwatch.com/category/iapt/ I found this LSE report, which forms part of the history behind the claim that IAPT should either cost CCGs very little or become fully cost neutral...

Moderator note: Message copied from here https://www.s4me.info/threads/coming-soon-bbc-radio-4-investigation-into-iapt-sep-2019.11360/page-2#post-204268 I followed some of Mike's links in his IAPT section: http://www.cbtwatch.com/category/iapt/ I found this LSE report, which forms part of...

Yes, it was almost as if he was promoting the need for an expansion of IAPT, since IAPT is the only way left for patients in England with mild-moderate mental health conditions (that is those under primary, rather than secondary or tertiary care) to receive NHS pyschological therapies. The...

Well, the tobacco industry were finally exposed!

But even bracketing (leaving aside) the debate on mind, brain and body, we can make a useful distinction between a 'mental problem' and a 'mental health problem', within the context these terms are commonly used in everyday medical and health encounters. For example, nobody considers the...

IAPT is both NHS England's and the DWP's 'baby'. It will take a lot of work to publically expose the problems inherent in the IAPT model. In the meantime it won't just be those with 'medically unexplained symptoms' being damaged by the lack of proper medical care, but also those with serious...

Mike has written about this on his website (as a comment response): http://www.cbtwatch.com/bbc-investigates-the-therapy-business/#comments

But what evidence does the 'GET/CBT premise' actually have? The deconditioning theory is just that, an unevidenced theory. That has been highlighted in many threads across the forum. What we are facing isn't a GET/CBT premise based on robust scientific evidence, what we are facing is...

I was actually using autism as an example of nosological classification and diagnostic difficulties, not to imply the the condition itself has similarities to ME or making comparisons between treatment limitations in these disparate conditions. I was responding to your statement that we do not...

But that is because those promoting CBT/GET for CFS/ME have ignored the actual clinical presentation of ME (or CFS/ME), ignored the post exetional malaise (and that PEM is much more than post exertional fatigue), have wrongly asserted that the condition is simply '6 months of fatigue that is not...

Well, there are plenty in the autistic community who do make the argument against the effectiveness of behavioural interventions for a neurodivergent individual! However, that is a big topic which I can't do justice to on this forum.

I dont think that is true. For example, currently autism is diagnosed based on symtoms and clinical judgment only - there is not a reliable biological marker or test for it and there always remains the possibility of misdiagnosis of individuals. Athough there are some specific genetically caused...

Yes. There is plenty of proof in the clinical presentation itself, as well as the trajectory of the disease. Patients have had decades of gaslighting, undermining this. A clinician that takes the time to actually listen and understand what ME patients are saying about their illness would...

I'm autistic - pretty much everything I write is a generic response to what I read, and usually my posts are just factual! I tend to quote bits of members posts as an introduction to my own reply if I think their words are well expressed and relevant to what I want to say myself.

He's probably hoping for an 'award for bravery to medical services in the face of patient hostility' type award in the future...

It's noticable that he used the Oxford criteria for selection of patients. With the expansion of IAPT and the fact that it seems beloved by all political parties in the UK, I expect he thinks he will have a long and lucrative career, working on CBT (and GET) for 'medically unexplained symptoms'...

I have never been referred for CBT or GET in relation to my ME, so I had to use the comments box to describe the harmful effects of what the consultant said when I was originally diagnosed back in 1993. However, I hope the comments (as well as the survey question results) get taken into account...

Sorry, didn't mean it to sound like a personal reply, I was just writing generically.