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  1. Simbindi

    Covid19 - Shielding and self-isolating for vulnerable people - policies and issues

    I've had 3 calls left on my landline today, from someone called 'Darrell' from the DWP, with a mobile number which he says is showing because he's working from home. It's asking me to call back because I'm on the shielding list and he wants to 'check I'm okay and have everything I need'. I'm...
  2. Simbindi

    Advice on mask-wearing to protect against Covid-19

    I am not sure, but I assume that if you purchase your masks from a registered pharmacy then they would only be supplying brands that have the correct certification. Currently, that is comparatively expensive to do in the UK, compared to sourcing them from Ebay or Amazon, which may be an...
  3. Simbindi

    Cognitive Complaints in Motor Functional Neurological (Conversion) Disorders: A Focused Review and Clinical Perspective, 2020, Perez et al

    Now available on Sci hub: https://sci-hub.tw/https://journals.lww.com/cogbehavneurol/Abstract/2020/06000/Cognitive_Complaints_in_Motor_Functional.1.aspx
  4. Simbindi

    Coronavirus: Advice from ME organisations

    This isn't advice from an ME organisation, but people may find it interesting to see how GPs are being told to approach practice from now on (by NHS England): https://www.england.nhs.uk/coronavirus/wp-content/uploads/sites/52/2020/03/CO485-COVID-19-Primary-Care-SOP-GP-Practice-V3-29-May-2020.pdf
  5. Simbindi

    UK - Resources for help getting food during quarantine and other supermarket related problems

    Agreed! There is a 24 hour BP garage with a M&S ministore near me (well 6 miles away but no traffic lights on the way). I've gone through phases of buying their ready meals when on offer, but very quickly get fed up with them. They don't have enough veg in them and are also very salty. For...
  6. Simbindi

    UK - Resources for help getting food during quarantine and other supermarket related problems

    If local charities have been able to organise redistribution of both fresh and ambient food that arises from the over-supply of the food/supermarket industry, why has it been beyond the wit of government to organise decent food parcels for the most clinically vulnerable...
  7. Simbindi

    Well At School: Chronic Fatigue Syndrome, Crawley, Loades et al

    Some schools do use a 'medical card' to allow kids to exit the classroom. However, every teacher should know each SEN (including those with medical needs) child/young person's needs if they regularly teach them (allowing them to exit the room discretely when required). A card can therefore be...
  8. Simbindi

    Well At School: Chronic Fatigue Syndrome, Crawley, Loades et al

    There was no 'standard' timeout for any individual young person when I worked in Special Educational Needs in mainstream state secondary schools. In England each child/young person has their own needs accessed, agreed and recorded either at Local Authority level through an Educational, Health...
  9. Simbindi

    UK - Resources for help getting food during quarantine and other supermarket related problems

    For members here who haven't been able to create a mental image of the typical standard 'shielded group' food parcel, I found an image online: This is roughly what I have received each week, for the last 4 weeks (minus the carton of juice and the onion, I've only received these items once).
  10. Simbindi

    UK - Resources for help getting food during quarantine and other supermarket related problems

    Worth seeing if you do get one tomorrow. If you do then maybe the last one was nicked. If you don't then you can assume the support is being withdrawn.
  11. Simbindi

    UK - Resources for help getting food during quarantine and other supermarket related problems

    If you've been getting your food parcel from the Local Council due to your dietary requirements then you won't have seen the 2 letters I received with my last food parcel (there's almost no meat so it wasn't worth the hassle for me to contact my LA for a vegetarian option). These letters are...
  12. Simbindi

    UK - Resources for help getting food during quarantine and other supermarket related problems

    Yes. Because they may be fishing for information to tick the box that you are now getting the all the support you require Edit (lost internet connection...) and because they may try to get you to accept a NHS Responder volunteer to meet your shopping needs.
  13. Simbindi

    UK - Resources for help getting food during quarantine and other supermarket related problems

    I take the view that if it's that important then they will write a letter to me. I suspect they are having a drive to reduce the number of free food parcels they are providing (whether centrally or via the local council). I would be very careful about agreeing to speak to them yourself, or even...
  14. Simbindi

    UK - Resources for help getting food during quarantine and other supermarket related problems

    Is it definitely a council volunteer doing this, because councils are able to refer vulnerable people to the NHS volunteer scheme? I am just ignoring any correspondence from my council. I know when they state that they are able to 'offer help with (shopping, prescriptions, finances, care)' what...
  15. Simbindi

    UK - Resources for help getting food during quarantine and other supermarket related problems

    I don't know if they've tried to call as I never answer my phone - my family members know that they need to email me. However, the last government food parcel contained an additional letter informing me about, and encouraging me to use, the NHS volunteer scheme to get my shopping instead of...
  16. Simbindi

    UK - Resources for help getting food during quarantine and other supermarket related problems

    https://www.milkandmore.co.uk/ have allowed me to register and order now. I think it will be worth me getting some milk, juice, yogurt, cheese etc., from them at least once a week (becoming a regular customer with them) as I think it will be wise to prepare for a second wave and possible new...
  17. Simbindi

    UK - Resources for help getting food during quarantine and other supermarket related problems

    Tesco used to do their own brand with aloe vera. It was about £2.50 for 300ml and I used to use this regularly before it became permanently unavailable in early March . It looks like they've stopped stocking it now! I've not been able to obtain affordable sanitizer throughout the period I've...
  18. Simbindi

    Lightning Process study in Norway - Given Ethics Approval February 2022

    I think it is important to state that the psychological theories underlying treatments such as CBT, GET, do not fit the patients' experiences of their illness (which is much more than 'chronic fatigue') or their mental states. That the way that most patients physically responded when they...
  19. Simbindi

    Coronavirus - worldwide spread and control

    I think one of the criteria before loosening lockdown should be that sanitising hand gel is readily and cheaply available. That's certainly not the case at the moment! I personally think that at least a significant minority of people won't be following the strict social distancing rules as they...
  20. Simbindi

    Covid19 - Shielding and self-isolating for vulnerable people - policies and issues

    It feels like they are making it up as they go along. People who were 'shielding' were always 'allowed' to leave their homes as the recommendation for them to shield was only ever advisory (that is, they can choose to follow the same lockdown rules that apply to everyone else). Many live with...
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