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    David Tuller: Trial By Error: So What's Happening with the MAGENTA Trial?

    Yep, @Arnie Pye - John Hancock - a large US insurer. It was listed under the news items yesterday under the BBC red button.
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    The use of monitoring devices such as actometers to measure outcomes in clinical trials. Discussion thread

    You can, but would teenagers leave it alone? You might need to be able to lock them out. The interfacd is specifically designed to be attractive and draw you in, join up with other people etc. Based purely on my personal experience I disagree. If the patient has any additional issues such as...
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    Simon Wessely: ‘ECT is in my own advance directive’

    I think that's the problem with any treatments if they are used inappropriately. They not only harm the individual treated, but also others who might actually benefit are put off.
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    The use of monitoring devices such as actometers to measure outcomes in clinical trials. Discussion thread

    Another thing that occurred to me re the use of actometers vs fitbit type devices that communicate with smartphone apps is that you wouldn't necessarily want the interaction. The smartphone apps are deliberately written with use of colours etc, to keep us using them. So a kid who is checking...
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    Lightning Process - discussion thread

    Sorry, but in my book someone who continuously retrains as lots of different things is either: Training in cr@p things that don't work and feels the need to keep offering ither cr@p to keep clients coming back Or Is cr@p at lots of things. It certainly doesn't mean the person is any good, or...
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    The use of monitoring devices such as actometers to measure outcomes in clinical trials. Discussion thread

    My understanding of the actometers is that they measure rest as much as activity and therefore the devices are probably always left on. I am sure they record events such as being powered off, powered on and charged etc. I know with wrist worn fitness devices like fitbit triggering alerts use...
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    The use of monitoring devices such as actometers to measure outcomes in clinical trials. Discussion thread

    They are certainly better than a diary, but I question whether they are accurate enough for use in a trial. For some the difference in activity is very small. Many of the devices in the market don't have the tolerances to cope with that. I know I can fool my device quite easily - it sees some...
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    The use of monitoring devices such as actometers to measure outcomes in clinical trials. Discussion thread

    I'm guessing here but I know from speaking to a very knowledgeable and helpful chap from their telephone helpline that fitbit (as of circa 18 months ago or so) are not designed to be, and should not be used as a medical device. Guessing some more- the accelerometers are presumably calibrated...
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    How to deal with Unexpected stresses

    Wish I could help out in person @Hell..hath..no..fury... Will be here for a virtual :hug: if you need one.
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    UK: Lack of support fears for thousands of 'hidden carers'

    So sad that young people, children are left to carry the burden society should share. It's not just costing these children their childhood, but the extra burden ultimately has a knock effect on their adult lives as well.
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    Concerns about Cochrane

    Nothing to see here. Please move along.... Reminds me of someone *headscratch*
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    Cognitive behaviour therapy for distress in people with inflammatory bowel disease: A benchmarking study - Chalder , Jordan , Hayee

    Bolding mine. Have they? Did they specifically and deliberately exclude patients who suffered from distress caused by IBD? Can Trudie et al prove that? Trudie doesn't seem to have been bothered by her co researchers claiming at various times they were studying ME when their entry criteria was...
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    How to deal with Unexpected stresses

    I'm glad he's well enough to go home. Hopefully you both get plenty of rest now. :hug:
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    Issues w/nausea in PEM

    At first I used to get the sore throat thing a lot. Then it stopped. Now it's back. Even a small amount if chatting and I soon start to sound like a chain smoker. Just overdoing it generally can trigger it, too. Nothing triggers it as fast as talking though. Being upright too long, the...
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    Concerns about Cochrane

    In the fast pace (sorry!) of the modern world it seems to me that people think that being informed is simply asking the opinion of someone who appears to be influential in the field. Now, I can understand in some fields you would need many years of education to truly understand specific...
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    Michael Sharpe skewered by @JohntheJack on Twitter

    Well. I've been through two decades of him and his ilk using their position and education to make wild assumptions about me, based on how I behave when my life has fallen apart because I'm sick. My motivation has been thoroughly questioned. I think it understandable that we should weigh his...
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    United Kingdom: ME Research UK (MERUK) News

    Yep. Wish I could like that post more than once.
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    How to deal with Unexpected stresses

    :laugh::rofl::rofl: When still working I used to have to go to various clients sites around the country, sometimes alone and sometimes I'd be with a colleague. at one site a woman with a really broad accent turned to me and announced loudly "You'm in'arv gotta funny accent, you'm 'ave!" i...
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    How to deal with Unexpected stresses

    I completely understand the conversation the thing. It's so much worse with people I don't know for a start, they will insist of talking quickly, mumbling, talking over radios (especially in taxi). Then if they have a strong or unfamiliar accent ..... I don't mean a foreign accent here - any...
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    How to deal with Unexpected stresses

    :hug: that is so hard @Hell..hath..no..fury... . I hope they work out what's wrong soon and it's something they can sort quickly. It's so frustrating not being able to be there in the way we want/need to be for our loved ones!
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